Teagan Romano Leukodystrophy Fund

Our Granddaughter Teagan Romano was diagnosed with Metachromatic Leukodystrophy (or MLD).  This is a very rare and serious disease, which you may find more information on this website: 

https://www.huntershope.org/ family-care/leukodystrophies/

It is urgent that funds begin to arrive as soon as possible, as time is of the essence.  Most children with this disease do not live past the age of 5 and she is currently just under 2 years of age.

Teagan may need experimental treatments to give her any hope of survival.  Our family is hoping to raise funds to put towards Teagan's future medical expenses.



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  • Jeffrey Kohr 
    • $200 
    • 11 d
  • Anonymous 
    • $100 
    • 13 d
  • Sarah Bono 
    • $20 
    • 15 d
  • Yazmin Cucci 
    • $25 
    • 15 d
  • Erica Avila 
    • $100 
    • 18 d
See all

Organizer and beneficiary

Eric Johnson 
Colorado Springs, CO
Kelsey Donnelly 
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