Help save my daughters life

Five years ago my daughter found a lump on her spine. She saw the doctor who told her there was nothing wrong. Dispute the fact that there was a condition on her father's side called fibromatsis. Which at the time we knew little of as my husband's mother never told him he carryed the condition. She suffered from it so we had to guess that it was the same thing. Which we informed the doctor of who dismissed it.


We had to fight for two years to get doctors to listen as the lump slowly got bigger and bigger.


Finally we were listened to and she had a scan which showed that there were more lumps though out her body. Not causing to much problem for her apart the one on her back. Which still the doctors refused to do anything about.


The lump started to have a impact on the way she walked thus needing a crutch to walk with. And still no one does anything but scan and see yes again it's bigger and pushing on nerves causing pain in her legs making it harder to walk. Still the doctors don't do anything.


Its is only after multiple admissions to hospital do they finally decide that she needs pain management and start her on chemotherapy to try and slow the rate of which this tumour on her upper back and spine is growing.


She had to go though many rounds of different chemotherapy, she became really poorly resulting in sepsis because of a infected picc line which then caused lung damage. And a collapsed lung.


She has undergone proton beam therapy in August this year which again caused kidney problems resulting in her body swelling and even more pain.


She spent 3 months in hospital only to be told last Monday that there is no more the hospital can do and telling us that she only has maybe 6 to 18 months to live.


She and the rest of the family are devastated.


We can't accept that in this day and age that there is no more that can be done.


We need help please I don't want her to die there must be a doctor somewhere on this planet who can help.


The doctors here have always refused surgery as an option but you see people all the time surviving tumours much bigger then my daughters. At the moment it's about the size of a football on her back. She needs about 20 different medications a day just to deal with the pain.


Please help we can't just give up and let her die. She has been though so much, she is only 20 years old. Her birthday is December 23rd it will be her 21st please help us so it's not her last.

I can't stop fighting for her.

Please help me save Bethanys Lewis's life.

A very scared and emotional mum

Thanks you for taking the time to read my daughters story.