Sadly, Jacob passed away on December 20, 2018. His amazing family would never ask for your help with expenses. I am asking because I know the bills will come, and memorial services are expensive. If you’ve never given, I ask that you give now. I’ve you’ve given before, please consider another gift. Let’s show the love of Jesus to this incredible family.
Jacob now needs a HEART TRANSPLANT! (As of June 2018)
Below is his story from when we started on this fundraising journey last year... but now we must do more!
From our original fundraising in 2017:
Jacob Mowl was born with a severe heart defect called HLHS, Hypoplastic Left Heart Syndrome. HLHS in its simplest terms means that Jacob does not have a left ventricle, the most important chamber in the heart. Because of this heart defect, Jacob has endured a lot in his first fourteen years. He’s had over 400 days in the hospital with five open-heart surgeries, a myriad of heart catheterizations, an open-lung surgery, renal failure, and he’s survived a hypertensive stroke event. He currently takes about 18 medications a day and receives weekly gamma globulin infusions in his stomach. Also as a result of his heart defect, Jacob has developed a secondary condition called Protein Losing Enteropathy (PLE) that he’s been battling for the last 8 years. PLE is a result of high pressures in the heart that cause the lymphatic system to dump protein and cause swelling all over the body, especially in the feet and face. Over the last month, this PLE has been really troublesome, and Jacob had a heart catheterization two weeks ago to try and address the problem. Despite the anatomical changes that the doctor made, Jacob is still symptomatic for PLE. Over the last few weeks, he has had severe swelling in his feet related to this. This week, things have gotten really bad. Jacob was admitted to the hospital for complications associated with PLE. The hospital placed a PICC-line (surgically placed IV that goes into the heart) and is using that line to do albumin (blood protein) replacement infusions. These infusions are only a Band-Aid, though. Normally PLE will eventually cause an HLHS patient to need a heart transplant, but Children’s Hospital of Philadelphia has recently started treating PLE and the lymphatic system with some innovative treatments that no one else is doing, and they’re doing it with great success. Jacob’s cardiac doctors believe that these treatments are just what Jacob needs to get back to feeling well and to living life to its fullest. The team believes that Jacob needs to get to Philadelphia ASAP. Jacob is truly a gift from God and a blessing to others. He has a thoughtful, generous heart, and always tries to find ways to help out. He loves school and learning, even when it’s difficult for him. He is an avid WWE fan (AJ Styles, John Cena, and Seth Rollins are his favorites!), and he loves watching cooking shows (Guy Fieri, Gordan Ramsay, and Buddy Valastro are frequent viewing in the Mowl home.). You will rarely find Jacob without a smile on his face, despite all that he’s been through. He truly loves life! So, here’s where we need your help. Jacob and his family need help in covering the cost of traveling from their home in North Texas to Philadelphia to seek out this treatment for PLE. They’ll also need help in covering the treatment costs, too. Time is of the essence, and every little bit helps. Thank you so much for wanting to be a part of his story!
- Byron Talley
- Mike & Christy Bailey
- eve motley sibbitt
Organizer and beneficiary