Chantelle is my niece. It is heartbreaking watching such a young person struggle with ALS knowing that it is an incurable fatal disease.
I am crowdfunding for her to meet her basic needs (mortgage, electricity) and also for spealized equipment.
ie; computer she can work with eye movement, etc
CTV news interview with Chantelle at link below:
VIDEO:
,ALS a costly burden for young Canadians
ALS patient Chantelle Petersen speaks about what she is going through physically and emotionally as a young person diagnosed with ALS.
The disease carries an enormous financial cost.
And that burden may be the most difficult to handle for these young people who are just hitting their stride.
"What we find is that a young person who is diagnosed with ALS in their twenties and thirties are just starting out in life … this (diagnosis) will obviously throw everything into disarray and unfortunately then there is a huge burden not only economically for those families, but also emotionally," said Taylor.
And that was case for Petersen, who says she can no longer walk or get out of bed by herself, and requires help to shower and eat.
The 31-year-old was also forced to drop out university because she has trouble using her hands and can't type.
Please help
I am crowdfunding for her to meet her basic needs (mortgage, electricity) and also for spealized equipment.
ie; computer she can work with eye movement, etc
CTV news interview with Chantelle at link below:
VIDEO:
,ALS a costly burden for young Canadians
ALS patient Chantelle Petersen speaks about what she is going through physically and emotionally as a young person diagnosed with ALS.
The disease carries an enormous financial cost.
And that burden may be the most difficult to handle for these young people who are just hitting their stride.
"What we find is that a young person who is diagnosed with ALS in their twenties and thirties are just starting out in life … this (diagnosis) will obviously throw everything into disarray and unfortunately then there is a huge burden not only economically for those families, but also emotionally," said Taylor.
And that was case for Petersen, who says she can no longer walk or get out of bed by herself, and requires help to shower and eat.
The 31-year-old was also forced to drop out university because she has trouble using her hands and can't type.
Please help