A dear friend, an amazing husband, a loving father, a stellar athlete, a celebrated coach, and a determined soul. Tony embodies all of these and more. He and his family have faced the reality of his recent amyotrophic lateral sclerosis (ALS) diagnosis with more strength, grit, optimism and determination than I can put into words. As a former college athlete and VMI cadet, Tony is more than accustomed to tackling challenges with a fighting spirit. But Lou Gehrig's Disease is a battle that no one should have to endure. For a glimpse into his fight against ALS, check out www.dontshrink.com
. You'll quickly get a sense for his devotion to family and life.... as well as a better understanding of the daily struggles associated with an ever-progressing motor neuron disease.
Tony and his wife, Amanda, are raising two precious girls
, Cora and Louise. Tony's diagnosis came weeks after Louise's birth
, and 2 years later, they are all living life to the fullest. As Tony's ALS progresses, they adapt as necessary. His service dog
, Jake, is the epitome of man's best friend. There's computer technology
that promises to keep Tony in communication with others as his speech is impacted by the disease
. The recent remodeling
of their bedroom, bathroom and foyer have made their home safer and more comfortable, and computer software
will allow Tony to better control their living space. And the need for a new vehicle has led to the purchase of a wheelchair-accessible van
, of which they just took ownership last week. Of all of these adaptations, Amanda's decision to take a sabbatical from her teaching career was a major decision that will undoubtedly improve Tony's quality of life and ensure optimal time together.
This site is in place to increase awareness of ALS, as well as to ease Tony and Amanda's financial burdens. Please give. Please share this site with others. No donation is too small. Your generosity is greatly appreciated!
Click the links above to read more about Tony and his family.Click here to read about Cora's ride to school in the new van.