
GRADE 4 Metastasized Terminal Glioblastoma Cancer
Donation protected
I would NEVER usually think about doing this because we are very private, but here we go....
I am still trying to process everything, so if I can't write down everything please bare with me ❤️ I dont usually share my life, but we could use a miracle...
In 2020 my daughter Chloe (12 at the time) was diagnosed with a grade 4 Glioblastoma brain cancer. She had surgery to remove 99.9% of her tumor and then did 33 rounds of radiation and oral chemo for 1yr. Despite being told she had 12-18mnths it has been 3yrs and 5 months it hadn't returned......until back pain struck a few months ago....I have asked for mri's on Chloe's back for the last 4 months and people looked at me like I was crazy....I knew......(just like when she had her brain tumor....I knew....
MRI yesterday came back as I suspected....sadly Chloe's cancer has returned with a vengeance. This time instead of her brain it is along her entire spine. (Her back is full of it) She is to have an mri hopefully today on her head to see if it is back there also. If it is game plan will be changed.
As of right now starting last night she was given a hefty dose of a steroid called Dex. This is to shrink the swelling before her first round of radiation last night. She was sent over there (Princess Margaret) for measurements and to make her mask. Next up (so far) will be 5 heavy rounds of radiation. 1 each night this week.
Chloe felt a bit defeated yesterday, but we are pressing on ❤️ she is in better spirits today
So....again just like in 2020, Sick Kids is our home again...
We are hoping for some help with travel costs, food costs, medications etc.
We are also in desperate need of prayers, positive thoughts or any positive vibes at this time. I am trying SOOOOO hard to stay positive.....I just can't stop thinking about the awful things that run through your mind.....please dont let her waste away.....please....I dont want to bury my child. She is only 15....
Funds will go to....
Medications
Assisted Devices
Travel expenses
Hotels/RMH
Meals
Games/activies to keep Chloe busy during treatments
Extra clothes
Trips for memories ❤️
Organizer
Ashley Hulme
Organizer
Newmarket, ON