Ethan's Albinism Camp

This is my son Ethan. He is 10 years old. He was born with a rare condition called albinism. He has yet to meet anyone his own age with the same condition. People with albinism have no melanin to protect them from the sun and renders them legally blind and sometimes completely blind. NOAH is the National Organization for Albinism and Hypopigmentation established in the U.S. Every other year they organize a week summer camp in the US for ppl from all over that have albinism where they can meet and learn more about their condition, what other tools are out there that can help with their every day life and most importantly create relationships with others that have the same condition; creating a community and support for one another. Not only just for him but for the rest of the family as well. This is a great opportunity for him and we've been working really hard to get him there this summer! So far we have been able to save $2800 for this trip. Our cost however has been estimated at $4000. So if you have anything to spare to help us get Ethan to his special camp we would be forever grateful! Thank you in advance for all your help and consideration! Sylvia and Kyle Kendziora