Kleefstra Syndrome Conference

A conference is being held on June 25, 2016.....for the families that have kids with the same syndrome as Kaitlynn , it is being held in Boston. There are only about 300 kids known in the world to have this. The doctor that discovered it and whom it is now named after, Dr. Kleefstra will be coming from the UK . Several other top researchers are also coming. There is a potential cure/treatment on the horizon for our kids.

Pray that The Lord will provide the funds we need to be able to attend. Hotel and airfare alone will be around $1,800

This could be life changing for our family. We will learn about and be able meet other children with Kleefstra Syndrome.

Any amount that you might be able to contribute would be greatly appreciated since this is an unplanned expense for our family.

Thanks and God Bless!!

Dana & David
www.kleefstrasyndrome.org