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When I was 20 weeks pregnant I got the news that no parent wants to hear.. The doctor said "there's something wrong with your baby." There was a large mass in her lung, one of the worst they had seen, and told me it wasn't looking good for her and I was then considered a high risk pregnancy. She was diagnosed with a CCAM (Congential Cystic Adenomatoid Malformation) that took up half of her lung and pushed her heart to the wrong side. The next 22 weeks were the scariest weeks of my life of weekly ultrasounds, sometimes more than once, watching the mass grow. I was told there was a high chance she wouldn't make it through birth, and if she did she would likely stay in the NICU at Yale for quite a while. I kept this a secret from almost everyone except those closest to me until I realized I was doing a disservice to expecting mothers going through the same thing. On June 9, 2015 my miracle was born stronger than anyone expected. By the grace of God Lily beat the odds and was able to breathe on her own, only spending ONE night in the NICU. But then came the next step.. Surgery, another thing no parent wants to have to prepare their little one for. I was told as long as she was asymptotic she wouldn't have to undergo surgery until she was 6 months old and that's where we are today.. Awaiting surgery. On January 29, 2016 Lily will have half of her lung removed. And as everyone knows with a surgery and recovery comes medical bills, large medical bills. At first I felt ashamed to ask for help, as many people do, but then I realized it wasn't about me it was about Lily. It was about getting my daughter the best care, the best team of doctors, and sharing her story in hopes that it will help other moms going through the same situation either expecting a CCAM baby or preparing for surgery. She is the strongest person I've ever met and I'm so blessed to be her mom, so blessed to watch her grow so strong surrounded by love and prayers. Anything that you are able to give would mean the world to us, no matter how small a donation it may seem to you, it means more than you'll ever know to us, and if you aren't able to make a donation please say a prayer for my little one as we prepare for her surgery.







