Tax deductible
We’re back again for our third year racing to raise funds for the Coffin-Lowry Syndrome Foundation!
Our Liam was diagnosed with CLS three years ago. CLS is a very rare genetic disorder that causes mental and physical abnormalities. Since it is rare funding is limited. We felt called to honor our Liam and all other kiddos affected by CLS by raising funds for the Coffin-Lowry Syndrome Foundation.
CLSF is where parents turn once they get their diagnosis. Mary Hoffman, founder of CLSF, gathers and shares any and all information she can about traits of CLS, effects of CLS, therapies for CLS, and most importantly she uses the foundation to connect effected families. The money we raise will go to support more research, family gatherings, equipment and tools for CLS kids, and so much more! We appreciate your donation!
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Any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me. More information about Coffin-Lowry Syndrome Foundation: The purpose of the Coffin-Lowry Syndrome Foundation is to provide a clearinghouse for information on Coffin-Lowry Syndrome (CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas and advice. CLSF provides family matching services, telephone support, online discussion forum and publishes a newsletter for members - CLSF News.
Our Liam was diagnosed with CLS three years ago. CLS is a very rare genetic disorder that causes mental and physical abnormalities. Since it is rare funding is limited. We felt called to honor our Liam and all other kiddos affected by CLS by raising funds for the Coffin-Lowry Syndrome Foundation.
CLSF is where parents turn once they get their diagnosis. Mary Hoffman, founder of CLSF, gathers and shares any and all information she can about traits of CLS, effects of CLS, therapies for CLS, and most importantly she uses the foundation to connect effected families. The money we raise will go to support more research, family gatherings, equipment and tools for CLS kids, and so much more! We appreciate your donation!
.................................................................................................................................................
Any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me. More information about Coffin-Lowry Syndrome Foundation: The purpose of the Coffin-Lowry Syndrome Foundation is to provide a clearinghouse for information on Coffin-Lowry Syndrome (CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas and advice. CLSF provides family matching services, telephone support, online discussion forum and publishes a newsletter for members - CLSF News.
Organizer
Alyse O'Steen
Organizer
Stafford, VA
Coffin-Lowry Syndrome Foundation
Beneficiary