Junhyos Journey in 2013

Junhyo one of six siblings is now five years old, He was born with a "diff-ability". Before the birth of him and his twin brother Julhyo, Junhyo was diagnosed with Arthrogryposis Multiplex Congenital (AMC)type Amyoplasia. You can say he is a AMC original. AMC is the contraction and curb or joints while the Amyoplasia is lack of muscle growth and development. While most kids with this condition are affected it only a few joints and limbs, Junhyo is one of the handful of kiddos world wide where the condition affects his entire body and requires ventilator support. It also affects his swallow making him a "silent aspirator" requiring him to be fed via a gtube straight to his stomach.
For over five years now, even before he was born we have been seeking answers and the best care possible for him. After a long wait, the search has brought us to Philadelphia Shriners, now known as 'The' hospital specializing on AMC. Unfortunately this is over 2500 miles from home. With Medical bills already sky high the financial burden has increased dramatically with unexpected expenses. His care is requiring a full month away from home here in Philadelphia for treatment and surgery. This month Junhyo will also be seen at DuPont Children's Hospital for consideration in participation of an experimental device called a WREX. After a long month of being poked, prodded and cut, he will need to return to Philadelphia for follow up care three more times this year. Then back to SLC for another surgery on his back in December.
You can follow Junhyos Updates on FB at https://www.facebook.com/JunhyosJourney
  • Rocio Manriquez 
    • $40 
    • 95 mos
  • Anonymous 
    • $50 
    • 95 mos
  • Beth Sellers 
    • $50 
    • 96 mos
  • lafaye leavitt 
    • $100 
    • 96 mos
  • Yebel Escalona 
    • $100 
    • 96 mos
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Organizer

Filiberto Ontiveros 
Organizer
Mesquite, NV
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