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Take a a moment to support me raise money for Tay.. please read this.
Tough times have been upon everyone recently, and it would mean so so much if you could help in any way possible. My little best friend, Taylor, 12, is battling things no person, let alone a child, should have to endure. You may have seen i’ve been raising money for Tay and her family, and we’ve raised $1.6k in two weeks, with your help. Can you help us some more?
This is her story written from her mother, Meagan. The sole carer, provider, guardian & parent of the girl whom has lived through literal hell, for the past 6 years.
Taylor has been under her Oncology team for 7 years or so & is recently undergoing treatment on compassionate grounds for a mediastinal mass that has been classed as inoperable….
On the 13th of August of this year, Taylor’s left leg stopped working completely.
The chronic pain that has come with this is crippling, traumatic & down right unfair on a girl that has yet to understand what life is all about.
The following day, Tay received the news that a new tumour has grown on her spine & has wrapped around the nerve canal. As it is sitting in the bottle neck with all of the nerves, the biopsy proves this is just as dangerous as it is to remove it.
Oncologists are in high hope that this will be another plexiform neurofibroma. Which she has already, which she is fighting off to some what degree.
They are slow growing & will give Taylor longer time until the inevitable surgery, which will have to happen in the future. Unfortunately by then, most likely, this surgery will effect the use of both legs permanently.
But in the meantime, while we wait for answers, pray for hope & miracles, Taylor is already wheelchair bound and is still in RCH for the meantime as everything that has happened has caused her central nervous system to disfunction… Meaning her body is shocked to understand the function of her legs being in use by this new tumour.
She has been on IV Ketamine Infusions to reach the stage of hallucinogenic state, so she is able to move her leg without the memory of pain whilst doing so.
It’s caused her to loose all bladder function completely but unwillingly. Taylor is also currently having two sessions a day with physiotherapists to learn to walk again, starting with being able to handle the pain of the floor under her foot, then moving to being able to hold 1kg of her body weight on her leg for 10 seconds.
Once learning to walk again (if she is lucky to walk again,) the chronic regional pain will continue to flare up and she will be re-admitted for the Ketamine Infusions when this happens. All while taking the wait and watch approach with 12 weekly MRI’s to monitor the growth of the new tumour for when the surgeons have to step in..
Because her body has gone into shock from pain the treatment for her original mass has been stopped for the next three days and we pray that this will stay stable for now.
Tays gofundme is below, i’ll be reopening commissions for drawings, however, donations are greatly appreciated more than you could ever understand. Help me to help Tay… Please
Tough times have been upon everyone recently, and it would mean so so much if you could help in any way possible. My little best friend, Taylor, 12, is battling things no person, let alone a child, should have to endure. You may have seen i’ve been raising money for Tay and her family, and we’ve raised $1.6k in two weeks, with your help. Can you help us some more?
This is her story written from her mother, Meagan. The sole carer, provider, guardian & parent of the girl whom has lived through literal hell, for the past 6 years.
Taylor has been under her Oncology team for 7 years or so & is recently undergoing treatment on compassionate grounds for a mediastinal mass that has been classed as inoperable….
On the 13th of August of this year, Taylor’s left leg stopped working completely.
The chronic pain that has come with this is crippling, traumatic & down right unfair on a girl that has yet to understand what life is all about.
The following day, Tay received the news that a new tumour has grown on her spine & has wrapped around the nerve canal. As it is sitting in the bottle neck with all of the nerves, the biopsy proves this is just as dangerous as it is to remove it.
Oncologists are in high hope that this will be another plexiform neurofibroma. Which she has already, which she is fighting off to some what degree.
They are slow growing & will give Taylor longer time until the inevitable surgery, which will have to happen in the future. Unfortunately by then, most likely, this surgery will effect the use of both legs permanently.
But in the meantime, while we wait for answers, pray for hope & miracles, Taylor is already wheelchair bound and is still in RCH for the meantime as everything that has happened has caused her central nervous system to disfunction… Meaning her body is shocked to understand the function of her legs being in use by this new tumour.
She has been on IV Ketamine Infusions to reach the stage of hallucinogenic state, so she is able to move her leg without the memory of pain whilst doing so.
It’s caused her to loose all bladder function completely but unwillingly. Taylor is also currently having two sessions a day with physiotherapists to learn to walk again, starting with being able to handle the pain of the floor under her foot, then moving to being able to hold 1kg of her body weight on her leg for 10 seconds.
Once learning to walk again (if she is lucky to walk again,) the chronic regional pain will continue to flare up and she will be re-admitted for the Ketamine Infusions when this happens. All while taking the wait and watch approach with 12 weekly MRI’s to monitor the growth of the new tumour for when the surgeons have to step in..
Because her body has gone into shock from pain the treatment for her original mass has been stopped for the next three days and we pray that this will stay stable for now.
Tays gofundme is below, i’ll be reopening commissions for drawings, however, donations are greatly appreciated more than you could ever understand. Help me to help Tay… Please