Help Fight Motor Neurones Disease!

As some of you may already know, my incredible Nana was diagnosed with Motor Neurons Disease (MND), specifically Bulbar Palsy, at the end of 2024. This diagnosis came after months of tests for issues with speech and swallowing. MND is a rare and progressive condition that affects the brain and spinal cord, leading to muscle weakness and wasting. In Nana’s case, Bulbar MND has impacted the muscles in her face, throat, and tongue, making swallowing difficult and taking away her ability to speak.

Despite this heart-breaking diagnosis, my Nana continues to show remarkable strength. Over the past couple of years, she’s been through so much, yet she still finds joy in the little things—like making regular trips to Lidl, going to the bingo with my Auntie Janet (and not winning), giving my Granda grief through her text-to-speech app (as he is the biggest wind-up merchant in the world) and constantly tempting me with cakes and food, trying to make me gain at least 10 stone daily.

To honour my Nana and show her just how much she means to me, I’m taking on a big challenge: I’ll be jumping out of a plane this August, with my uncle Andrew and our friend Ashleigh, to raise money for the MND Association. This cause is incredibly close to my heart. Nana has been the most selfless person in my life, and I want to do everything I can to support research, improve care, and provide services for people living with MND.

Any donation, no matter how small, would be greatly appreciated. Your support means a lot to me and my family!

Lots of love,

Rach x