The Strongest Little Boy I Know

This is my nephew, Lowen Anthony.  He was born on September 19th,  2016 and has been through so much in his short little life so far.  He has spent most of his life up to this point with very few answers as to why he is always in and out of the hospital, why he cant breathe without the help of oxygen and why he continues to struggle, but he finally got a diagnosis...Lowen has Smith Magenis Syndrome.  This story begins shortly after he was born.  A few days after he left the hospital, he was rushed back where he stayed for 3 weeks.  Many days were filled with unanswered questions but we knew immediately that Lowen was a fighter, he was so strong!  He has been in and out of the hospital many times since(almost 30 ), has had multiple procedures, surgeries, doctor's appointments and he remains 100% oxygen dependent.  During the 3 week hospital stay, my brother had missed so much work and had to leave his full time job.  My brother and sister in law have three other boys that needed to be cared for as well, so they spent most of their time with other family and friends.  They were all seperated most of those three weeks.  I love my brother very much but I didnt realize how much I admired him until now.  The decision to leave his job was what needed to be done to be in the hospital with his baby boy and his wife, but it came with a price, he lost the financial security of a full time job.   He has since found a part time job at night that allows him to be available during the day for Lowens many doctor appointments, to help with the other kids and to be there to support his wife.  This job has been a blessing for those reasons but it isnt paying the bills.  My sister in law is one of the strongest women I know and I cant imagine what she goes through every day, my nephews are so lucky to have her as their mommy.  She cares for my 2 year old nephew all day while caring for Lowen around the clock (the older ones are in school)  Lowen doesnt sleep at night so they get very little rest.  This is common with Smith Magenis Syndrome, they dont sleep at night or at all really, so he is dependent on his parents 24 hours a day.  My brother and sister in law have a bond and a love that is so strong which helps protect their family but i know that this has been extrememly hard on them financially.  They really need my brother to keep his part time job right now so he can be available for any last minute doctors appointments and any emergency trips to the hospital, Lowen has had many.  I wish life wasn't so hard for them right now...they shouldn't have to worry about losing their home or feeding their family, they should be able to focus on their four sweet boys and  on living a "normal" life.  So many of you have asked how you can help and I believe this is how.  Please consider donating anything you can to help cover every day expenses for my brother and his family.

"Smith Magenis Syndrome is a developmental disorder that affects many parts of the body.  The major features of this condition include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioral problems."

Please say a prayer for our little fighter and his family