Just recently we were informed that Reids bone age is that of a 17yr old and he is not able to acess the PBS Growth Hormone Program any longer and nor will any other teenager in Australia no matter there need of it to assist in maintaining a worthy enjoyable life, as the regulartory body that controles it disagrees with almost every other country that it should be available on the PBS as to not deny any person the opportunity to a good and rewarding existance. After many questions an phone calls we were informed that there is no other option than to fund this ourselves.
During the short amount of time Reid was not recieving this hormone we saw our son drained of all the things he had worked so hard for and reduced to a life of hospital visits and unconscions existence with moments of the person he was.
We have started Reid back on the Growth Hormone an after negotiations this will work out round $10,200 per year,close people to our family have already been so wonderful suporting us in trying to restore this worthy young mans ability to enjoy life,
We will be having some fund raising events in the near future and there will be some links and futher reading on Reids fight to NOT SLEEP HIS LIFE AWAY,
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