My name is George and I have SMA type 1. My Mummy and Daddy was told that I have Spinal Muscular Atrophy when I was 3 months old, Mummy was told by the Doctors that I would only have a life expectancy of 6 months – 2 years. I AM NOW 4 YEARS OLD! My journey in fighting SMA started when Mummy and Daddy found some very clever scientists, who have created a drug that helps me manage the effects of this rare genetic condition. I was a lucky boy to receive this life saving medicine and throughout my journey I have met so many lovely doctors and professionals who have helped me. I need a lot of equipment to help with my condition, I cannot walk on my own and I cannot even sit up without mobility aids as I also have scoliosis, my dream is to walk but to do this I need a machine called an Innowalk, I am strapped in, and the machine does the walking for me…. It is like being a TRANSFORMER!! Lots of my friends and family are helping Mummy and Daddy buy me this magic machine and I would like to share with you my journey and help others to raise awareness for SMA Type 1.