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ALYSSA ♥️♥️♥️

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ALYSSA IS CURRENTLY AT MARIONJOY REHAB FOR ADMISSION FOR CONSISTENT FREQUENT SEIZURES AND SWALLOWING ISSUES. RIGHT NOW THEY HAVE A NG TUBE IN HER NOSE FOR NUTRITION BUT THIS COMING FRIDAY JULY 14TH SHE IS GOING TO CENTRAL DUPAGE HOSPITAL FOR A G-TUBE PLACEMENT (THRU HER STOMACH). FROM A RECENT MRI FINDING OUT FROM HER RARE DISEASE THAT HER AND ANTHONY HAVE THAT HER BRAIN HAS SIGNIFICANTLY SHRUNK AND LOST ALOT OF BRAIN MASS WHICH IS WHAT CAUSES HER TO LOSE ABILITY TO DO THINGS FOR GOOD AND IT PROGRESSES OVER TIME. ALSO COME TO FIND OUT DOCTORS DOING RESEARCH ON THERE RARE CONDITION. ALYSSA IS THE ONLY GIRL IN THE WORLD WITH THE DISEASE! LEAVING THE OTHER 26 OF 27 ARE MALES.

Organizer

Judy Mead
Organizer
Coal City, IL

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