Living With MS-Walk Aide Fund

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Living With MS-Walk Aide Fund

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My name is Alicia, I recently turned 30 and I have a 5 year old son who is the light of my life. I was diagnosed in June of 2015 with Relapsing Remitting Multiple Sclerosis. I used to be a highly active young adult until my first attack hit me on July 4th 2015. I am not able to do a majority of things without assistance and playing outside with my son is difficult as I can not keep up with him My doctors can trace this back in my medical history for over 6+ years that the MS went undiagnosed and without treatment. My life has forever changed more than I could ever imagine over the past year and a half. I have slowly had difficulty walking, and treatments for the MS have had little to no effect. My left leg from my knee down to my foot is severely weakened due to nerve damage from the MS. I have fallen more times than I can count and currently have to use a cane to support myself. My left foot has foot drop which causes me to trip over it as it does not have reflexes to know when to pull up. This is damage to one of the major nerves in my leg, the peroneal nerve. This is causing my body to over exert energy to help make up for the lack of movement in my leg and foot. Now over the past 3 months I have been working with new doctors at a few different MS centers in western Washington. Most recently I was referred to a rehabilitation specialist who prescribed a walking brace. I made the first appointment available to have the brace made in hopes this can at least help with walking and mobility. The brace was made and off I go. Or so I thought....After a few go arounds with adjustments, the brace has helped a little bit however is highly uncomfortable and I am still having to use the cane. When I was in the office the doctor mentioned a new option to help with the walking, it is called the Walk Aide. The device is a small computer that sends a shock through the peroneal nerve that tells my foot to pull up. He asked if I would like to see if it can help me, as it tends to help around 75% of patients. I figured I might as well try it hoping for the best. As soon as the devise was hooked up I was still skeptical. I was asked to get up from the chair I was in and the doctor will follow me to set the system to know my walking patterns. I began walking, a little uneasy at first allowing myself to grab a rail when I felt weak and didn't want to fall. Then I was asked to walk back the other way to the chair again. I sat down and there was a huge smile on my face. I felt the taste of freedom and independence again. Next the doctor asked me to walk the hallway which was approximately 50ft, I felt a sense of confidence and went for it. The doctor could barely keep with me, and after about 20 minutes the system was dialed in. I began to tear up with happiness as I never thought I would be able to walk without assistance, let alone ever be able to play outside with my son. I thought to myself, great news technology was going to make my life easier so I can be safer and more active. After insurance denials and appeals I find out it is not a covered medical expense under either of my insurance plans. With being in and out of work due to the MS and constant changing of medications I am unable to afford this miracle device. The system requires 3-5 specialty physical therapy sessions to make adjustments and teach me how to walk properly again. I am hopeful this Walk Aide system is still possible in my future. Thank you from the bottom of my heart for thoughts of positivity and assistance if anyone is able to help out. Sincerely,Alicia

Organizer

Alicia Erickson
Organizer
Tacoma, WA
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