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Remission Mission

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Hi! For those of you that don't know me my name is Brett. I was diagnosed with Acute lymphoblastic luekimia and lymphoma October 2015. The same week I was diagnosed, my son Jax, was also diagnosed with Autism Spectrum disorder, ADHD, and Sensory processing disorder. It was a hell of a week. I have been receiving treatment since the day I was diagnosed and it has been pretty brutal at times. I have had numerous set backs and unexpected bumps in the road along the way. About this time a year ago the Dr. ran a bunch of very important tests and couldn't find any trace of the cancer. It seemed as though the high doses of Chemo worked. Melissa (best wife ever) and I knew that this didn't mean I was in the clear. This proved to be true because I relapsed in December. I actually relapsed earlier than that but I was hospitalized December 16, 2016. I have been in the hospital since then and have been getting daily chemo therapy treatments since. The goal this time around was to get the cancer under control and then the goal is to do a bone marrow transplant. This involves getting a donor (my older sister Raya, luckily is a match) taking their bone marrow and putting it into my body. In order to prep for this I have to get mega doses of chemotherapy and full body radiation (6-8 different chemos, everyday, over the course of a couple weeks, while receiving the chemo I will also be getting the radiation). Well we have hit another bump in the road. My cancer isn't responding to the chemo treatments at the moment... My body is getting beat to hell but the cancer cells that have resurfaced are practically immune to the chemotherapy that I have already received. And I can not go into the transplant phase of my treatment plan with this amount of active cancer, it would be game over at that point. So my oncologist has come up with a new regime/plan. I'm not happy with this new plan of treatment but it's the plan for now so all I can do is be hopeful. The plan is to go very heavy on chemo, like figure out what would kill me, take me to the edge and then back it off a bit. The second part involves radiation. It would be head to toe radiation while getting the chemo therapy and would be every day. We are going to manage my symptoms/side effects as they present themselves. It would be around 2 weeks of this then try for a transplant. We can do a transplant with active cancer, but it is not ideal. It raises the severity and risk for graft vs host disease and lowers survival rates, but it is do-able. There are a lot of things that go into prepping for the transplant ,it's quite in-depth and not something that happens quickly, it's a very lengthy and trying process for all parties involved. Graft vs host is a huge concern. It could be as mild as just a rash or much much worse, unfortunately we won't know until it happens. If the bone marrow transplant takes, I will need anti rejection meds indefinitely and supervision/isolation for a month or so, then I should be good to go. I am going to be hospitalized for atleast the next few months or at best in and out of the hospital a whole lot. This basically makes Melissa a single mom. She is already overwhelmed and stretched very thin as is, so if you all could do whatever you can for her to help her in my absence, I would forever be in your debt. She is a one in a million woman and deserves nothing but the best and my heart breaks for her and this terrible situation that she and our children have been forced into. She does her best taking care of me, running back and forth to the hospital, running all of the errands, taking over all if my responsibilities plus her, trying to provide for our family by selling her clothes, household items and also making and selling her jewelry when she can( which she even brings to the hospital to sell to the nurses and staff) She also has been cleaning houses during the week because it's literally the only thing that she can do to help provide for our family, that has hours flexible enough to allow her to run back and forth to take care of me and the kids everyday. She is doing it ALL! Thank you all for your support thus far. I wouldn't have made it here with out you. I will not be able to work for a while and your help is needed now more than ever. Please feel free to donate and share this account when ever or how ever you can. If my tone has become more desperate over the last year, there is a reason for it. But I do want to make sure everyone knows how much I already appreciate all that you have all already done for me and my family. I do not enjoy doing this at all, to be honest it feels kinda yucky and awkward but I am literally a desperate man with his back up against a wall. If you have any questions feel free to ask away. From the bottom of my heart, thank you for helping my family survive this terrible and unexpected happening ,over the last year and a half. Melissa and I are grateful beyond words and sincerely wish that there was a way other than words to be able to properly show our appreciation for all of your extreme kindness and generosity. Cheers, I love and thank you all for saving my life. I just want to get back to being a husband, brother, friend, worker and son again. I miss my family so much it hurts. I just want to put all this heartache behind us and give my wife and kids our happily ever after. Thank you all so much for your continued help and support during this very difficult time My best, Brett.

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Donations 

  • Jaclyn Magliocco
    • $50
    • 7 yrs
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Organiser

Brett Mullin
Organiser
Runnemede, NJ

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