Ashleigh is a 14 year old from Clonmel Tipperary
Ashleigh was diagnosed at 3 months with Neurofibromatosis type 1.
At 3 she suffered an optic nerve glioma, a benign growth behind her eye that is leading to reduced eyesight and no peripheral vision at present.
In 2018 Ashleigh suffered a stroke, which lead to weakness on the right side of her body along with Tourette’s syndrome. Her movement was restricted which meant she was confined to wheelchair use for nearly 2 years.
In 2019 Ashleigh under went Scoliosis Surgery in the National Children's Hospital in Crumlin. This involved rods being place in her back, for spinal fusion with the hope of straightening her spine. Although this was a success and has given Ashleigh back some amount of mobility she required further treatment beyond the ability of Irish care system and forced her to travel to Portland Hospital in London. There she had an MRI scan, which indicated further tumors, five which where found in her brain, along with previous diagnosed ailments.
Slievenamon Cycling Club & Friends are completing a 300 KM cycle in a day on 10th July 2021 to raise funds to help with costs of an operation in Portland Hospital in London whereby a consultant paediatric neurosurgeon will attempt to remove the five tumours in her brain, leading to relieving the pressure her brain is currently under. This procedure will cost approximately £100,000 and maybe even more.
UPDATE
UPDATE on why we are cycling 300k ....
Ashleigh came home last week after been in UK to 4 hospitals for various tests... sadly ashleigh now faces chemo to try shrink tumor on an optic nerve to try save sight in her eye (totally blind in other eye). . but first an operation needs to be done on her stomach as she cannot eat without been sick and will need to build up her strength to battle thru chemo !!!
Please donate and help us help Ashleigh
Ashleigh was diagnosed at 3 months with Neurofibromatosis type 1.
At 3 she suffered an optic nerve glioma, a benign growth behind her eye that is leading to reduced eyesight and no peripheral vision at present.
In 2018 Ashleigh suffered a stroke, which lead to weakness on the right side of her body along with Tourette’s syndrome. Her movement was restricted which meant she was confined to wheelchair use for nearly 2 years.
In 2019 Ashleigh under went Scoliosis Surgery in the National Children's Hospital in Crumlin. This involved rods being place in her back, for spinal fusion with the hope of straightening her spine. Although this was a success and has given Ashleigh back some amount of mobility she required further treatment beyond the ability of Irish care system and forced her to travel to Portland Hospital in London. There she had an MRI scan, which indicated further tumors, five which where found in her brain, along with previous diagnosed ailments.
Slievenamon Cycling Club & Friends are completing a 300 KM cycle in a day on 10th July 2021 to raise funds to help with costs of an operation in Portland Hospital in London whereby a consultant paediatric neurosurgeon will attempt to remove the five tumours in her brain, leading to relieving the pressure her brain is currently under. This procedure will cost approximately £100,000 and maybe even more.
UPDATE
UPDATE on why we are cycling 300k ....
Ashleigh came home last week after been in UK to 4 hospitals for various tests... sadly ashleigh now faces chemo to try shrink tumor on an optic nerve to try save sight in her eye (totally blind in other eye). . but first an operation needs to be done on her stomach as she cannot eat without been sick and will need to build up her strength to battle thru chemo !!!
Please donate and help us help Ashleigh