Hi Everyone ,
My name is Susan and I really need your help. I urgently need to raise money to pay for a new cancer medicine that is not on the PBS list for breast cancer yet but will be in a year or so ? Unfortunately for me , I do not have that long .
I am a super single mum to my gorgeous 6yo daughter Amber Rose, super friend to my posse of amazing friends here on the Gold Coast & beyond and interior stylist/designer to the stars and for those out there that still think suede paint feature walls at home are cool !
( Here's a tip ..... They are NOT !!! Lol )
In October 2015 , I was devastated to be diagnosed with breast cancer at 43 , after a lump just appeared overnight. Even worse , it was Triple Negative Breast Cancer. A rare and super aggressive subtype of breast cancer that is difficult to treat with no specific treatment developed for it anywhere in the world at this stage.
On top of that ... I was already Stage 4 . As well as the original tumour , it had also spread to the lymph nodes under my arm, my liver and my bones. Without any treatment I was given 3 to 6 months to live.
AWESOME ... I say .... Do I get a free set of steak knifes next ????
Fast forward 12 months ... whilst maintaining my positive attitude and sense of humour , I have been through surgery to remove the tumour, my breast and had 20 rounds of chemo.
The doctors mentioned these new immunotherapy drugs in particularly KEYTRUDA . With some stage 4 melanoma patients on the trials have their tumours just disappear. Similar results have happened in the American trials on triple negative breast cancer patients also .
So I pestered my oncologist to find me a trial , testing this new drug on Triple Negative patients here in Australia. I will go anywhere, any state , I said just get me on it !!!
We found one at the Wesley in Brisbane and off I went with new hope , only to leave in tears after being told I wasn't eligible. I have had 3 previous types of chemo drugs and to qualify for the trial, I was only allowed to have one or two previous treatments.
ARE YOU KIDDING ME ???!!!
The next day I received a call from the trial doctor asking if I was in a position to buy the drug myself , at $19,000 a round ( I need 10 rounds - one every fortnight !!! ) that was a definite no. So here I am , asking for your urgent help.
Everybody's life is such a precious gift and your donations will help give me the most priceless gift there is ... Time.
Being here longer for a little girl who needs her mum. For a little girl who has been so strong and brave with what we are both going through . One who doesn't deserve to grow up without her mum so young in her life.
And for a mum who is not ready to give up on life without exhausting all possibilities .
So please , if you are in any position to help me purchase this medicine , please donate today.
Thank you for your love and support
UPDATE- Susan was given the bad news on Mon 31st Oct that her bone marrow now has cancer in it. Without this treatment she will be lucky to see her 45th birthday in Feb.
Please Help Us Fight !!!
Click this link to find out about the drug I need and trial results so far https://www.google.com.au/url?sa=t&source=web&cd=1&ved=0ahUKEwihlvzwucPPAhUH5GMKHXT3CeEQFggKMAA&url=http%3A%2F%2Fwww.medpagetoday.com%2Fhematologyoncology%2Fbreastcancer%2F57727&usg=AFQjCNFqHsUdT2-eT6nuQX86mnaYDPd5rw
News article / 10th Oct 2016https://www.facebook.com/dyveid.nikola.3/posts/1777214202547105