Ava'Rose Poole

I am a family friend and like many other friends of the family I'm sure we all feel a bit helpless, useless and want to try help Ava and her family through such an awful time if we can? That's why I've set up this funding page because what you can't see underneath all the brave faces her parents are putting on...there is a family struggling, trying to not let this tear them apart. Some of you may or may not be aware that Ava requires quite intense treatment for the next 18 months at least at GOSH. This is having a financial strain on the family already and this awful journey has only just begun. I don't want to go into too much detail because anyone that knows Chloe & Scott will know they aren't looking for sympathy and would never dream of asking for this help themselves, but obviously as parents they want to be by Ava's side...resulting in Chloe having to give up work. They have also had to sadly give up their family home where most of their memories as a family with Ava have been made. As if this awful experience wasn't traumatic enough behind all the appointments and treatments are expenses and travelling costs that are starting to take their toll. So this is why I have started this funding page. If I can help relieve some of the pressure and stress from the family by doing this, no matter how big or small the donation then I know it's been worth it...if you find yourself wanting to help but don't know how then maybe this is the place to start. No matter how big or small. I promise it will help. Thank you for reading...below is Ava's journey so far the perfect combination of Warrior & Princess On the 9th June 2016 Ava went for an MRI scan on the brain, I demanded one, because over the years her right eye has got incredibly worse! Fast forward to- Thursday 16th June 2016 was just a normal day for us, I picked Ava up from school early to attend her normal monthly eye check ups at Princess Alexandra Hospital Harlow. I asked about her results from her MRI scan, as I hadn't heard anything back. The doctor didn't really have a clue, he said a few things which made me start to panic! We had to wait to be transferred to neurology. 20th June 2016 we got an appointment, to see the Neurologist, he explained that the scan has come back that Ava has a tumour in her brain, in a very rare place and so deep in the middle of all her organs that work every part of your body, (we now know why her eye is very bad as it has been pushing on her nerve) since then she has had scan after scan to try find out what sort of tumour this is, as it is still growing! So Wednesday 20th July 2016 our brave little Ava went for her brain surgery at Great Ormond Street to remove only 2mm to send away, this took 6 long hours. A week later we got a phone call to say that they needed to operate again as they didn't quite get enough. 2nd August 2016 she went back again, having the same procedure! We waited another week, and this time it came back that she has a slow growing Glioma Brain Tumour. Monday 3rd October 2016 she has started chemotherapy for 18 months, to hopefully stop it from growing, but the tumour will always be there, if this works then great, but she will be having regular scans into her teens, maybe longer, because at any time it can start to grow again. We found out in August 2016 that back in 2012 when Ava had a brain scan (about her eyes) that even though they said her report came back normal, in fact the tumour was very much obviously there. Back in 2012 this could have been sorted or even better they would have just removed it as it was tiny back then. Now Ava and us as a family are going down a whole different path, and right now now of us knows where this will lead. What we do know is that she is our brave little girl and we will be fighting this with her every step of the way no matter what. We love you Ava'Rose xxx