It is with a broken heart that we have had to create this page in the hope to help Princess Sophie and her perants Sarah (my sister) & Dermot.
Sarah gave birth to a beautiful baby girl on the 17th of Aug 2016 a day that she and dermot cherish and will never forget. Having had an emergency c-section Sophie was born. A healthy looking baby girl with a touch of Jaundice. Just perfect in every way.
Weeks of happiness passed until Sarah started to question as to why Sophie's Jaundice seemed to be getting progressively worse, and then Sophie started finding it hard to keep bottles down, Sarah brought Sophie to the doctors on numerous occasions with doctors suggesting she maybe lactose intolerant and this may be the cause so they changed her food but there was still somthing wrong.
Then one evening Sarah & dermot spent most of the night trying to console Sophie she seemed in pain not only that she then got worried because she had developed a small weeezz while breathing.
Next morning Sarah brought Sophie back to the doctor , doctor was more concerned for Sophie's appearance and nappies, he suggested that she bring her to holles street to get the Jaundice checked out further it was from here that there world got turned upside down.
They where transferred to Our lady's hospital in crumlin the same day this was the start of then tests. Through this all Sarah & dermot could do was support & worry for Sophie, watching in horror of what was happening to there perfect little girl. The words that they had heard over and over and prayed they would not hear we're spoken, the biopsy showed what had suspected she had 'Biliary Atresia'!
Now it is all system go, Sophie is heading to Kings Hospital on Monday 03rd of October for her operation on her Bile Duct, even though this operation is not going to fix Sophie's problem it will hopefully help her.
Even though Sophie's medical cost are covered it is solely up to Sarah & Dermot to arrange flights, transfers & accomadation for the 11-12 night stay they will have in London, as you can imagine the cost of this will be quite high which Sarah & Dermot have to come up with. More stress on top of the worry and trying to come to terms with what is happening to there perfect baby girl now and what is to face her in the future.
As a family all we can do right now is support & comfort Sarah & Dermot in these dark days and pray for our gorgeous grandchild, niece / cousin.
Sophie is our princess.
We hope to try and help Sarah & dermot with this pressure and ask if anyone could help us, ask if you could kindly donate something anything ,no matter how much you could afford every bit helps. Also we ask that you pray for this little girl on her travels & her recovery after surgery.
Thank you so much for reading this.
Lots of Love Sophie's broken hearted family xxx
For anyone who has not heard of Biliary Atersia:
You may not of heard of this before because it is so rare that only 1 in 18,000 babies suffer from this illness. Biliary atresia is a life-threatening condition in infants in which the bile ducts inside or outside the liver do not have normal openings.
Bile ducts in the liver, also called hepatic ducts, are tubes that carry bile from the liver to the gallbladder for storage and to the small intestine for use in digestion. Bile is a fluid made by the liver that serves two main functions: carrying toxins and waste products out of the body and helping the body digest fats and absorb the fat-soluble vitamins A, D, E, and K. With biliary atresia, bile becomes trapped, builds up, and damages the liver. The damage leads to scarring, loss of liver tissue, and cirrhosis. Cirrhosis is a chronic, or long lasting, liver condition caused by scar tissue and cell damage that makes it hard for the liver to remove toxins from the blood. These toxins build up in the blood and the liver slowly deteriorates and malfunctions. Without treatment, the liver eventually fails and the infant needs a liver transplant to stay alive.
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