Support Baby Levon and The Guells
Donation protected
Levon is a sweet baby boy born on August 20th, 2016. He has a beautiful big sister, Ruby, and loving parents, Tom and Chelle.
Levon was recently diagnosed with Spinal Muscular Atrophy (SMA). SMA is currently a non curable and eventually fatal disease. As no parents are ever prepared to handle such a devastating diagnosis, both physically or mentally, help is needed in all different ways. We are asking for everyone to come together and help this wonderful family get through this hard time.
We want help to make Levon's journey one full of love and the best possible care without the burden of his mom and dad having to worry about finances. This extra money can go towards the family truly being able to enjoy this valuable time together.
If you can, please donate. Your generosity is greatly appreciated. Also, be sure to share this with your friends and family.
What is SMA?
Spinal muscular atrophy (SMA) is a genetic condition which affects the nerves that control muscle movement – the motor neurons.
Babies born with the most severe type of SMA - Type 1 - are not able to sit up unsupported and the majority don’t survive beyond the age of two years. Intellect is normal and it is often observed that babies with SMA are bright, alert and responsive.
What are the symptoms of SMA type 1?
The symptoms of SMA type 1 include:
• Muscle weakness and poor muscle tone
• Poor head control
• Weak cry and cough
• The legs tend to be weaker than the arms
• Swallowing and feeding difficulties
• Increased susceptibility to respiratory tract infections
• Developmental milestones, such as lifting the head or sitting up, can’t be reached.
Generally speaking, the child’s survival depends on the age of onset of the condition. The earlier the symptoms appear, the shorter the expected life-span.
Sadly SMA type 1 is a fatal disorder and there is no cure. However, research for a treatment is moving forward at a fast pace and there are things that can be done to support the child and their family so that they can achieve the maximum quality of life.
Levon was recently diagnosed with Spinal Muscular Atrophy (SMA). SMA is currently a non curable and eventually fatal disease. As no parents are ever prepared to handle such a devastating diagnosis, both physically or mentally, help is needed in all different ways. We are asking for everyone to come together and help this wonderful family get through this hard time.
We want help to make Levon's journey one full of love and the best possible care without the burden of his mom and dad having to worry about finances. This extra money can go towards the family truly being able to enjoy this valuable time together.
If you can, please donate. Your generosity is greatly appreciated. Also, be sure to share this with your friends and family.
What is SMA?
Spinal muscular atrophy (SMA) is a genetic condition which affects the nerves that control muscle movement – the motor neurons.
Babies born with the most severe type of SMA - Type 1 - are not able to sit up unsupported and the majority don’t survive beyond the age of two years. Intellect is normal and it is often observed that babies with SMA are bright, alert and responsive.
What are the symptoms of SMA type 1?
The symptoms of SMA type 1 include:
• Muscle weakness and poor muscle tone
• Poor head control
• Weak cry and cough
• The legs tend to be weaker than the arms
• Swallowing and feeding difficulties
• Increased susceptibility to respiratory tract infections
• Developmental milestones, such as lifting the head or sitting up, can’t be reached.
Generally speaking, the child’s survival depends on the age of onset of the condition. The earlier the symptoms appear, the shorter the expected life-span.
Sadly SMA type 1 is a fatal disorder and there is no cure. However, research for a treatment is moving forward at a fast pace and there are things that can be done to support the child and their family so that they can achieve the maximum quality of life.
Organizer and beneficiary
Angel Rettler
Organizer
Eden, WI
Michelle Guell
Beneficiary