Sweet baby Theo is just about to turn 2 months old!
Theo went into the hospital a few weeks ago with some concerns from his parents, but they never expected to get transferred up to Doernbecher and get their lives turned upside down.
Sweet baby Theo has been officially diagnosed with SMA, or spinal muscular atrophy. Spinal muscular atrophy is a group of hereditary diseases that progressively destroys motor neurons- nerve cells in the brain stem and spinal cord that control essential skeletal muscle activity such as speaking, walking, breathing and swallowing.
Molly and Zak have had a very overwhelming few weeks, and are now ready to meet this head on and give Theo Burrito the best possible life he can have.
The silver lining is in the past 2 years a new gene therapy treament for SMA has come around, and it has shown promising results for those who use it. Theo will be undergoing intense medical treatment over the next year, but it will run up over $2,000,000.00 in medical expenses!
Molly and Zak are going to do everything in their power to give Theo the best life he can have, but it is devastating that it is at such a high cost. Please help us come together and support Molly, Zak and Theo, and help him get the medical treatment he needs!
Organizer and beneficiary
Molly Simons-Kimball-Nussbaum
Beneficiary

