
Jett's Journey
Donation protected
This is a need for my nephew Jett. Brandon and Vanessa are wonderfull parents and would never ask for any help. In fact they are always giving to everyone else in need. Now as a family member with my own child with medical needs I know that it can be stressful and expensive. I am asking everyone to donate a few $ as each $ will help and be spent for medical expenses and travel.
Update from Vanessa after first Dr. Visit below:
Well, it wasn't the news we had hoped for, but we were mentally prepared if this was the case. Jett will need at least 3 sets of casts and a possible surgery. They made the casts to where we can wait two weeks in between each casting. That will help us better prepare financially for the travel to St. Louis and it won't affect his treatment. No question we made the right decision to come up here.
He wasn't particularly happy during the casting, but he is doing great now. :) Thank you again to Dr. Matthew Dobbs and your staff. It gives us such piece of mind knowing Jett is in the best hands possible.
Vanessa explains it very well so I stole this from her Facebook Page - Love ya
Warning! This is going to be LOOOONG, so please bear with me. Seriously. It's a novel. ❤️
(Short version: Please pray for our family. )
So many of you have asked for an update and since its been awhile since I've posted anything regarding Jett's Journey, I thought I would fill you in on where we were at currently. (With a little back story for some of our new friends.)
If you listen, and I mean truly listen to God's voice, you can gain so much wisdom. I have felt God's grace pour over us time and time again, specifically since Jett was born. We found out Jett had bilateral clubfeet when I was 19 weeks pregnant. I immediately felt an overwhelming sense of wanting to protect this sweet little angel growing inside of me. I wanted to fix whatever need fixing. I spent many sleepless nights researching everything I could regarding clubfoot treatments, seeking out the best doctors, making sure we were doing everything we could to ensure a successful outcome. (Can I also say that when he was born I was OBSESSED with his feet??!!! Those first six days after he was born prior to the casting process I'm certain I kissed them about a million times. Minimum. Seriously, if it wasn't something that would have affected his quality of life I would have left them just how they were. They were perfection to me and I loved them.)
One of the biggest frustrations is that a lot of people, including our friends and family (including us!) thought it would be easy to find a doctor in Houston. I mean, we are right in the center of the best of healthcare, right?! Well, even though there are many, many wonderful physicians, there are very few pediatric orthopedic surgeons that specialize in Clubfeet. And even fewer locally...and this isn't something where you just go to just anyone to correct. We initially found an amazing orthopedic surgeon, with a phenomenal track record. He was so knowledgable and we quickly became attached to his staff. Soon after Jett's surgery and last set of casts, we were told our beloved doctor was moving. This was devastating. We felt like we had to start all over again and we were right at the beginning stages of treatment.
We have yet to find an orthopedic surgeon who specializes in CF locally that we feel is the best fit for us. We have tried to no avail. We are in a crossroads and we know we need to get him to the best of the best. We just can't risk chancing his treatment with just anyone just because it's more convenient. We are hoping we are wrong, but we suspect he may be in the beginning stages of relapse. With all of that being said, in a week from Friday we will be on our way to see Dr. Dobbs in St. Louis, MO.
Now, I have known about Dr. Dobbs since I started researching CF. He and his staff have been INCREDIBLE. Since before Jett was born they have been quick to answer any questions we have had and we weren't even patients of his yet! We have spent more time on the phone, email, or FB with them then we have ever gotten from anyone locally. Seriously, they go above and beyond to ensure the best care. And of the all of the support groups I am involved in for CF, not one has had a negative experience with Dr. Dobbs that I know of. Not ONE! In addition, Dr. Dobbs is who invented the bar we have been using for almost a year. It allows him to move easier while still holding his feet in the proper position while in his boots and bar.
If you have gotten this far, GOD BLESS YOU!!! You are amazing for sticking through this novel of a post. Please continue to pray for our family and for Jett's treatment. Pray that I will have peace and to not worry. I have been feeling very anxious about our trip. I'm so ready to hear what Dr. Dobbs has to say. We need the reassurance that we are doing the right thing. In addition, if Jett does indeed need casting again, it will more than likely require multiple trips. God has always provided and we are thankful to Him in advance, so I'm doing my best not to worry about that either.
One of the amazing lessons I've learned through Jett's Journey is perspective. No parent wants to watch their child struggle or go through pain or discomfort, but this is treatable and we will get through this. As long as we are diligent throughout this treatment process there is a strong chance Jett will overcome this and who knows, may become an Olympic athlete one day! In the midst of it all, Jett has strengthened my resilience. We are so blessed to live in a country where we can find treatment, even if it's across the U.S.
Thank you friends and family for your support, encouragement, and prayers! We love you!
Update from Vanessa after first Dr. Visit below:
Well, it wasn't the news we had hoped for, but we were mentally prepared if this was the case. Jett will need at least 3 sets of casts and a possible surgery. They made the casts to where we can wait two weeks in between each casting. That will help us better prepare financially for the travel to St. Louis and it won't affect his treatment. No question we made the right decision to come up here.
He wasn't particularly happy during the casting, but he is doing great now. :) Thank you again to Dr. Matthew Dobbs and your staff. It gives us such piece of mind knowing Jett is in the best hands possible.
Vanessa explains it very well so I stole this from her Facebook Page - Love ya
Warning! This is going to be LOOOONG, so please bear with me. Seriously. It's a novel. ❤️
(Short version: Please pray for our family. )
So many of you have asked for an update and since its been awhile since I've posted anything regarding Jett's Journey, I thought I would fill you in on where we were at currently. (With a little back story for some of our new friends.)
If you listen, and I mean truly listen to God's voice, you can gain so much wisdom. I have felt God's grace pour over us time and time again, specifically since Jett was born. We found out Jett had bilateral clubfeet when I was 19 weeks pregnant. I immediately felt an overwhelming sense of wanting to protect this sweet little angel growing inside of me. I wanted to fix whatever need fixing. I spent many sleepless nights researching everything I could regarding clubfoot treatments, seeking out the best doctors, making sure we were doing everything we could to ensure a successful outcome. (Can I also say that when he was born I was OBSESSED with his feet??!!! Those first six days after he was born prior to the casting process I'm certain I kissed them about a million times. Minimum. Seriously, if it wasn't something that would have affected his quality of life I would have left them just how they were. They were perfection to me and I loved them.)
One of the biggest frustrations is that a lot of people, including our friends and family (including us!) thought it would be easy to find a doctor in Houston. I mean, we are right in the center of the best of healthcare, right?! Well, even though there are many, many wonderful physicians, there are very few pediatric orthopedic surgeons that specialize in Clubfeet. And even fewer locally...and this isn't something where you just go to just anyone to correct. We initially found an amazing orthopedic surgeon, with a phenomenal track record. He was so knowledgable and we quickly became attached to his staff. Soon after Jett's surgery and last set of casts, we were told our beloved doctor was moving. This was devastating. We felt like we had to start all over again and we were right at the beginning stages of treatment.
We have yet to find an orthopedic surgeon who specializes in CF locally that we feel is the best fit for us. We have tried to no avail. We are in a crossroads and we know we need to get him to the best of the best. We just can't risk chancing his treatment with just anyone just because it's more convenient. We are hoping we are wrong, but we suspect he may be in the beginning stages of relapse. With all of that being said, in a week from Friday we will be on our way to see Dr. Dobbs in St. Louis, MO.
Now, I have known about Dr. Dobbs since I started researching CF. He and his staff have been INCREDIBLE. Since before Jett was born they have been quick to answer any questions we have had and we weren't even patients of his yet! We have spent more time on the phone, email, or FB with them then we have ever gotten from anyone locally. Seriously, they go above and beyond to ensure the best care. And of the all of the support groups I am involved in for CF, not one has had a negative experience with Dr. Dobbs that I know of. Not ONE! In addition, Dr. Dobbs is who invented the bar we have been using for almost a year. It allows him to move easier while still holding his feet in the proper position while in his boots and bar.
If you have gotten this far, GOD BLESS YOU!!! You are amazing for sticking through this novel of a post. Please continue to pray for our family and for Jett's treatment. Pray that I will have peace and to not worry. I have been feeling very anxious about our trip. I'm so ready to hear what Dr. Dobbs has to say. We need the reassurance that we are doing the right thing. In addition, if Jett does indeed need casting again, it will more than likely require multiple trips. God has always provided and we are thankful to Him in advance, so I'm doing my best not to worry about that either.
One of the amazing lessons I've learned through Jett's Journey is perspective. No parent wants to watch their child struggle or go through pain or discomfort, but this is treatable and we will get through this. As long as we are diligent throughout this treatment process there is a strong chance Jett will overcome this and who knows, may become an Olympic athlete one day! In the midst of it all, Jett has strengthened my resilience. We are so blessed to live in a country where we can find treatment, even if it's across the U.S.
Thank you friends and family for your support, encouragement, and prayers! We love you!
Organizer and beneficiary
Stephanie Massey
Organizer
Atascocita, TX
Vanessa Padgett
Beneficiary