
Serenity's Bone Marrow Transplant
Donation protected
Hi, my name is Serenity Avila. I am 6 months old with a rare gentic syndrome called Griscelli Syndrome type 2. Griscelli syndrome type 2 is where I have "immune system abnormalities in addition to having hypopigmented skin and hair. Affected individuals are prone to recurrent infections. They also develop an immune condition called hemophagocytic lymphohistiocytosis (HLH), in which the immune system produces too many activated immune cells called T-lymphocytes and macrophages (histiocytes). Overactivity of these cells can damage organs and tissues throughout the body, causing life-threatening complications if the condition is untreated" (https://ghr.nlm.nih.gov/condition/griscelli-syndrome).
My mom is not working right now so she can be with me here at the Texas Childrens Hospital in Houston Texas because I need her. My daddy is staying back home so he can work for our family and be there for my older brother Avien who's in pre-k. It's tough for my daddy to leave my mom and I here so I can get better but it's only for a short period of time. The doctors told my parents I need aggressive chemo first, then from there I will need a bone marrow transplant. It's going to be a long journey but I know in the end I will be okay. The money I am trying to raise will go towards paying my medical bills and for anything I need while I'm here in the hospital. It would mean the world to me if you could help my family out to make this a bit easier for us all. Thank you for reading my story and for your help.
With love,
Serenity Avila
My mom is not working right now so she can be with me here at the Texas Childrens Hospital in Houston Texas because I need her. My daddy is staying back home so he can work for our family and be there for my older brother Avien who's in pre-k. It's tough for my daddy to leave my mom and I here so I can get better but it's only for a short period of time. The doctors told my parents I need aggressive chemo first, then from there I will need a bone marrow transplant. It's going to be a long journey but I know in the end I will be okay. The money I am trying to raise will go towards paying my medical bills and for anything I need while I'm here in the hospital. It would mean the world to me if you could help my family out to make this a bit easier for us all. Thank you for reading my story and for your help.
With love,
Serenity Avila
Organizer
Selena Avila
Organizer
Dumas, TX