Before this happened, my dad was recently laid off from a company he spent over 22 years with and was given no health insurance. In the process of getting his newly found retirement, he became ill with this rare disease. With no insurance, we tried to get Medicare disability and after going through what seemed like rings of fire he was denied. After being in the ICU for several weeks, he was transferred to a rehabilitation facility in Williamstown, NJ. My Mom drives an hour everyday to see him and I take the trip every weekend to him. This place has been a total nightmare to begin with. Because of no health insurance, he has been on a private pay status (so I can only imagine how much they are over charging us) and this was the only place that would accept him as Medicaid pending needing full respitory care. The facility is filthy, the first room he was in was allowing his roommate to have dog into the room. Not caring to the fact my Dad has severe allergies to dogs. After fighting with administration several times, he gets into another room that has a leaking ceiling and dirt everywhere. After several weeks, my dad finally is able to get off the respirator and into the long care facility wing. There he was getting his physical therapy 5 times a week and news that the tracheotomy collar will finally be removed. Two weeks go by and no trach collar is removed and get word that he is being moved to a different wing of the facility. This wing is even worse than the first wing he was in. Cramped spaces, barely enough room for two people to be comfortable in staying. And severely under staffed, the poor nurses are running to each room barely getting a chance to breathe. While visiting him last week, he had to wait over 30 minutes for someone to change him after he had a bowel movement. We should not be letting our loved ones get treated this way.
Today, my mom and I received word that they will no longer be treating my dad at the facility unless a payment is made because it’s getting too expensive to treat him and they can no longer pay without any payments. We have exhausted all possible options and avenues to get insurance coverage for my dad. We are in the process of applying for Obamacare and disability insurance again for him. But they really are leaving us with no other choice but to ask for strangers help. My Dad has rights as a patient and this type of behavior should not be tolerated. My dad cannot walk, stand, feed, bathe or clothe himself without special assistance and training. How can a place threaten to kick him out without giving you viable options. He still has a trach collar in his throat and is paralyzed from the waist down. What options do we have? Any type of help or advise or anything else at this point would be greatly appreciative. My family and I are at loss. Thank you for taking the time to read this.
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