Stop Logan's Infantile Spasms

Two weeks ago I received a call from my brother telling me that my adorable 7month nephew was having some  medical issues.  It suprised all of us because Logan has and still is the happiest baby and we couldn't unterstand why he was have these problems.   Since right now they need to be with their son and  worry about getting his seizers undercontrol, I have decided to start this page so they don't have to worry about all that they will need to pay for his week stay in the hospital.  Below I have attached the story which my Brother wrote for everyone to understand what is going on with sweet Logan.  The injections that he needs to take daily for 4 weeks costs $150,000.  We just received word today that the insurance will cover most of it but they will need to make a deductable payment just on this medicine for $3085.  This does not include any other medical costs that have come up at the hospital, or if another few weeks of  medication need to be ordered, where they will have to pay that deductable again.  I ask that if you can help them in any way it would be greatly appreciated.  It is really hard living across the US and not being able to help them out, so this is my way of taking some of that stress that they are having and easing it a little.  Thank you for reading about Logan and his story of having a Infantile Spasms.

.....A little over a week ago my son started making some movements that weren't normal to his demeanor almost like a hiccup or being startled.  We went to Urgent Care and they pretty much said it's nothing to worry about kids do weird things as they grow and he'll stop saying it's Myoclonic Jerking. We made an appointment with our pediatrician and he said just about the same thing, but thought that it would be good for us to see a Neurologist. We attempted to make an appointment being told that it would be 5 weeks till we could be seen. We felt that was an extreme time frame and contacted our pediatrician again asking if there was anything else we could do. We were told that if his condition got worse or if we had any concerns to go to the ER (typical cover your ass statement). Being the parents that we are and knowing that something wasn't right and not settling for anything but the best we took our son to the ER at our local Children's Hospital this past Saturday. Immediately Logan was diagnosed with something called Infantile Spasms, a rare form of seizures, only about 2000 cases are diagnosed every year. Most cases aren't diagnosed for weeks or even months due to lack of knowledge of this confition in the medical field. Logan is undergoing an extreme medical treatment and testing. All signs look like we caught this early and our actions could of saved any long term effects from occurring, only time will tell. We will be in the hospital for some time, but Logan is a trooper and being tougher than his parents right now....lol.
I'm not looking for the typical Facebook post " Oh my God I'm so sorry what can I do to help" etc. that isn't the point of this post. But what Logan would like for you to do is share and like this post in hopes that he could help your child be diagnosed early if he or she has the same symptoms. And please all parents out there fight for your child and don't settle for mediocrity, you know your child the best, be their voice and act on your parental instincts and get the care and answers you deserve whatever your case may be.

Donations (0)

  • Ornella Grosz 
    • $25 
    • 38 mos
  • Anonymous 
    • $100 
    • 38 mos
  • Dionne Pedersen 
    • $25 
    • 38 mos
  • Heather Resney 
    • $50 
    • 38 mos
  • TIM & DOTTIE PIERCE 
    • $100 
    • 39 mos
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Organizer and beneficiary

Kendra Zimmerman 
Organizer
Huntersville, NC
Tia Cain 
Beneficiary
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