Stop Logan's Infantile Spasms

$4,500 of $8,000 goal

Raised by 43 people in 35 months
Two weeks ago I received a call from my brother telling me that my adorable 7month nephew was having some  medical issues.  It suprised all of us because Logan has and still is the happiest baby and we couldn't unterstand why he was have these problems.   Since right now they need to be with their son and  worry about getting his seizers undercontrol, I have decided to start this page so they don't have to worry about all that they will need to pay for his week stay in the hospital.  Below I have attached the story which my Brother wrote for everyone to understand what is going on with sweet Logan.  The injections that he needs to take daily for 4 weeks costs $150,000.  We just received word today that the insurance will cover most of it but they will need to make a deductable payment just on this medicine for $3085.  This does not include any other medical costs that have come up at the hospital, or if another few weeks of  medication need to be ordered, where they will have to pay that deductable again.  I ask that if you can help them in any way it would be greatly appreciated.  It is really hard living across the US and not being able to help them out, so this is my way of taking some of that stress that they are having and easing it a little.  Thank you for reading about Logan and his story of having a Infantile Spasms.

.....A little over a week ago my son started making some movements that weren't normal to his demeanor almost like a hiccup or being startled.  We went to Urgent Care and they pretty much said it's nothing to worry about kids do weird things as they grow and he'll stop saying it's Myoclonic Jerking. We made an appointment with our pediatrician and he said just about the same thing, but thought that it would be good for us to see a Neurologist. We attempted to make an appointment being told that it would be 5 weeks till we could be seen. We felt that was an extreme time frame and contacted our pediatrician again asking if there was anything else we could do. We were told that if his condition got worse or if we had any concerns to go to the ER (typical cover your ass statement). Being the parents that we are and knowing that something wasn't right and not settling for anything but the best we took our son to the ER at our local Children's Hospital this past Saturday. Immediately Logan was diagnosed with something called Infantile Spasms, a rare form of seizures, only about 2000 cases are diagnosed every year. Most cases aren't diagnosed for weeks or even months due to lack of knowledge of this confition in the medical field. Logan is undergoing an extreme medical treatment and testing. All signs look like we caught this early and our actions could of saved any long term effects from occurring, only time will tell. We will be in the hospital for some time, but Logan is a trooper and being tougher than his parents right now....lol.
I'm not looking for the typical Facebook post " Oh my God I'm so sorry what can I do to help" etc. that isn't the point of this post. But what Logan would like for you to do is share and like this post in hopes that he could help your child be diagnosed early if he or she has the same symptoms. And please all parents out there fight for your child and don't settle for mediocrity, you know your child the best, be their voice and act on your parental instincts and get the care and answers you deserve whatever your case may be.
+ Read More
Logan went in on Thursday for a 24 hour EEG at the hospital. The EEG result showed that the Hypsarrhythmia pattern for the Infantile Spasm was not present anymore :). The EEG was still abnormal though showing other seizure patterns but not as sever as the Infantile Spasm These seizure spikes could have been there all along or could have possibly been triggered by the Infantile Spasms, as the doctors are not sure at this time. The Infantile Spasms are what they call loud and look like a scribble of zigzags which makes it hard to see any other activity if there is any. The doctor felt like this was an improvement and has decided to taper the ACTH steriod shot until Logan is completely off of it. The seizure medication will need to be increased to treat his current seizures and they hope that thely will completely go away at some point. They also took more blood as well so they could run some lab tests. Once we receive anymore updates we will be sure to let everyone know. Logan along with Brion and Tia can not thank everyone for the support and love that has been recieved the last few months. Please continue with all the positive thoughts and prayers!
+ Read More
I just got off the phone with Tia and Logan is still experiencing one to two seizures a day. The doctors have decided that he needs to continue the injections for at least another month (that will be another $3000 deductable for $150,000 worth of medicine) and they have decided to up his oral seizure medication dosage as well. It is becoming a world wind of emotions when he seems to make one step forward, but then will end up going back a step. We are glad that he is only have a minimum of 2 seizures a day because when he wasn't on any medicine the number was about 5 times that. Please continue your prays for our little Logan that this new dosage will work. He is still the happy little boy we love who is definetly making his normal baby milestones. He is crawling and is eating table food now.
+ Read More
Stop Logan's Infantile Spasms has reached 51% of its goal. Thanks to Everyone who has donated
+ Read More
Well Logan seems to take steps forward, and the backward. He went 5 days without having any seizures, but had 3 in the last two days. The medicine seems to be working, but the unknown if they need to spend another $3000 deductible for another two weeks could possibly be in the future.
Since he has been home he has started scooting across the floors. We give it probably another week before they have a mobile 7 month old. Please continue sharing Logan's story and wishing Brion and Tia positvie news when they meet with Logan's doctors and specialists in the next few weeks.
All of us would love to thank everyone that has helped Logan out towards the expense of his medication and hospital/doctors bills. It is greatly appreciated! There will be more uupdates on what is going on with his seizures in the next few days.
+ Read More
Read a Previous Update
Kathi Chaffee
33 months ago

So good to hear! Will keep them ALL in our thoughts and prayers! Thank you so much for the update!

+ Read More

$4,500 of $8,000 goal

Raised by 43 people in 35 months
Created August 20, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
OG
$25
Ornella Grosz
33 months ago
$100
Anonymous
33 months ago
DP
$25
Dionne Pedersen
33 months ago
$50
Heather Resney
34 months ago

Thinking of you all and hope little Logan is doing better.

TP
$100
TIM & DOTTIE PIERCE
34 months ago

Our prayers are with you for a speedy recovery for Logan.

$25
Kim & Peter Amrhein
34 months ago
1
1

God Bless your sweet baby boy ... in our prayers!

TS
$50
Thelma Sampedro
34 months ago
1
1
$50
Anonymous
35 months ago
JT
$100
Janet Thompson
35 months ago
1
1

Prayers going up for little Logan!

ST
$100
Sharon Thompson
35 months ago
1
1

Anything for family! Sending positive thoughts to Logan!!

Kathi Chaffee
33 months ago

So good to hear! Will keep them ALL in our thoughts and prayers! Thank you so much for the update!

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.