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ALS Support for Julie Barone

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One year ago this month, at the age of 50, Julie Barone received the terminal diagnosis: Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease.  

JUST A FEW MONTHS PRIOR…  Julie was working full-time in the family business, plus volunteering at least as many hours in her community of Madison, Ohio.  “She’s one of the most giving people I have ever known,” said Madison High School band director Kristy May. “The hours she gives to anyone, whether it be in the band department, the pre-school, elementary programs where she served, the basketball programs. It’s just phenomenal.”

BUT TODAY…  Julie’s health has deteriorated to the point that she can no longer move her limbs or get out of bed.  She needs help with everyday tasks: dressing, brushing her hair, eating, and even toileting—and her condition is getting worse. 

HOW YOU CAN HELP…  The financial obligations of Julie’s current level of care already exceed her income (including very limited support from insurance and public assistance), but her doctors are recommending increasing care to 24/7 coverage, as it is unsafe for her to be alone at this stage of her disease.  The goal is to raise $29,120, enough to pay for eight hours of care per day, seven days a week, for the next six months.  If each person reading this shared the message with their Facebook friends, and each of those people contributed $10, Julie would easily reach her goal.

WITHOUT YOUR SUPPORT…  Julie is left alone for at least six hours out of every day, until her teenage son comes home from school or work: unable to move, dial a phone,  or call for help if needed.

JULIE’S SPEECH IS VERY LIMITED, BUT SHE WANTS YOU TO KNOW… “Although my diagnosis is terminal, I am keeping a positive outlook.  Mentally and spiritually, I am dealing with this deadly disease pretty well.  I have my family and friends around to support me.  I don’t complain about my situation, because I know that this is all part of God’s plan.”  

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    Julie Barone
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    Madison, OH

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