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Well friends and family, I've reached a worst case scenario moment. With my disability claim denied, Kate and I are at a crossroads. UPDATE 16/11/2017 Kate and I are divorcing and I'm in California. Its looking anywhere from 2 years to never for this disability process until laws regarding my disease change.
Original Story: My name is Brian, often called Brain or Zed, and I am starting this gofundme to handle the toll of filing for disability and the lengthy process proving you are disabled. At the moment, my last day of work was May 31st. Since then I've been jumping through hoops to become approved, but at the moment I find myself out of my cash reserves, behind on bills, and in general facing some very scary decisions, including how we are going to get caught up on our mortgage or other bills.
So a bit about what I am facing medically. I am one of the lucky (bad luck is still lucky) men who has been diagnosed with Fibromyalgia. I bring up the gender part because statistically its one man for every eleven women who are diagnosed with it. I don't know how accurate that statistic is, though, because most doctors aren't sure. I suspect it has to do with the traditional male role of being a man and muscling through the pain. I've tried that. I've tried that for a long long time. Fibromyalgia is a scary beast, one that effects my cognitive speed as well as attentive level and memory, and that's before even getting to the pain. On my worst days, I can't keep from bouncing off the walls because the pain is all encompassing. The pain really first limited me in high school. I managed to fold my back the wrong direction while diving into a pool and ended up with six bulging discs. Since that day, fibro has not let me forget the pain. The discs aren't herniated, thankfully, and I've been able to avoid surgery, but there's still a pretty hefty burden even without such drastic measures. I am on six medications to try and stop the Fibro pain, but only the most expensive of medications seems to work for me. For a 90 day supply of my most expensive medication, I pay $400 and the Pfizer pattent was just extended to 2018. This has been very hard to sustain, as you might imagine. Nevertheless when I hit around 27 the symptoms started getting worse. I will be in the middle of telling someone something in intrinsic detail and suddenly my mind will blank and I will have no idea what I was talking about. Other memory function has been impaired as well, though not as severely.
In the months since I've gone onto disability (or lackthereof) I have gotten behind on almost every bill I have, will likely need to see a lawyer, and in general find myself without the funds needed to survive. I'm at the point where we may lose our house, and most certainly I am facing losing the existing medical support I have if I can't pay my premium. In short, I'm desparately asking for help in spite of my pride. I'm really not sure what more there is to say. I need to pay bills, badly, while fighting for what I've paid into for 10 years at my company. I've gone from being a reasonably paid in home and in business tech for anything from home networks to virus problems, and now to being a phone jockey trying to reassure my bills will indeed be paid. Once I finally do get disability, its 60% of what I was making while working, which basically puts me back to the starting wage ten years ago.
Now a bit about the people who have been invaluable to my surviving this transition. I won't say their names because I respect their privacy, but I really couldn't do it without them. And now I can't do it without all of you. If we get the funds needed, we would be current for a few months along with paying things I have neglected, and then I can start living a bit and paying back the kindsness these people have shown me. So please, help, and when you do, please don't take from what you and your family need to survive and thrive.
Organizer
Brian Valdez Casselman
Organizer
Fair Oaks, CA