My twin Kat is my hero. They are my hero because they speak their mind, and stand up for those that need a voice. Kat is a disability rights activist, and on top of that, a fantastic artist. However, they need others right now to stand up for them and help.
Kat has a genetic disorder called Ehlers-Danlos Syndrome with numerous coinciding complications, including Postural Orthostatic Tachycardia (high standing heart rate/fainting/fatigue), Interstitial Cystitis (a chronic, painful bladder condition), widespread inflammatory arthritis, peripheral neuropathy, bursitis in their hips, and more.
Kat was admitted to the ER on January 21st. They were having stroke-like and seizure-like symptoms (difficulty and inability to talk, uncontrollable body shaking, fainting, extreme vertigo, dizziness, intense searing neck and base of skull pain). After numerous tests and a CT scan, they sent Kat home and recommended that they see a specialist.
Since Kat’s release they’ve been unable to leave the apartment, primarily due to their vertigo, as they can't stand for long periods and need to lay down constantly to avoid feeling like they are going to throw up. Also, during this time, Kat has developed numerous rashes that are consistent with rashes associated with Lupus.
As you can see, they really need to see a specialist and get testing. However Kat and their sweet husband are unable to afford a specialists care. They fall in a coverage gap in Kansas. They make just over the threshold to qualify for medicaid, and not enough to afford monthly insurance payments. So any visits to the hospital, or a specialists care, would all come out of pocket.
They could really use your help. The $9000 would cover the $5000 ER visit bill they received, and the rest would cover them seeing a specialist. I thank you from the bottom of my heart for anything you can give to give this family some relief.