Update since the beginning of all of this madness...As most of you know, Olivia was officially diagnosed with Hereditary Angioedema with Normal C1-INH. It's rare and incredibly frustrating. There is no cure, but with time, we can hopefully get things under control. Her case is so rare, everything is experimental. We are lucky to be seeing one of the top immunologists in the US. Most Doctors have no idea how to approach treatment for her. As her parents, we've educated ourselves and have to direct a lot of her care. We never know when she'll have an attack and when she does, we don't know how severe. At this point, it mostly her lips/face, abdomen, and throat/airway. Recently, she's been suffering through constant attacks with few breaks. We are working on getting her on a regimen to prevent attacks, but it just takes time. We need to figure out all of her triggers. She's been intubated three times this summer due to airway swelling. Those are the scariest for us. Seeing your child connected to a life support machine is terrifying. It has definitely effected our family in a lot of ways. We look at life a lot differently now. Please read our updates for more information. This will be a life long journey for Olivia and everyone who is close to her.
-Cherie
***I'm Holly, Olivia's Aunt and Cherie's sister. Olivia has undiagnosed anaphylaxis. She's had 7 reactions this month, one where she had a near death experience and had to be intubated and on a ventilator for a couple of days. Her team of Doctors is working hard to figure out what is causing these reactions, but she has been in and out of the hospital constantly. She is currently back at Swedish First Hill after this last reaction and is now experiencing facial paralysis due to the swelling during her reactions. Her family doesn't want to ask for handouts, but with the cost of her medical care, being in and out of the hospital and Cherie and Matt missing so much work, it's been really tough for them to stay afloat. It would nice for them to not have to worry about the basics when life is so stressful right now. All donations will go directly to providing the basics at this point (rent, food, medication, parking at Swedish First Hill-which is a ridiculous $17/day, gas to get to all of her appointments, etc). Anything is greatly appreciated. Please share this. Thank you for all of your support.







-Cherie
***I'm Holly, Olivia's Aunt and Cherie's sister. Olivia has undiagnosed anaphylaxis. She's had 7 reactions this month, one where she had a near death experience and had to be intubated and on a ventilator for a couple of days. Her team of Doctors is working hard to figure out what is causing these reactions, but she has been in and out of the hospital constantly. She is currently back at Swedish First Hill after this last reaction and is now experiencing facial paralysis due to the swelling during her reactions. Her family doesn't want to ask for handouts, but with the cost of her medical care, being in and out of the hospital and Cherie and Matt missing so much work, it's been really tough for them to stay afloat. It would nice for them to not have to worry about the basics when life is so stressful right now. All donations will go directly to providing the basics at this point (rent, food, medication, parking at Swedish First Hill-which is a ridiculous $17/day, gas to get to all of her appointments, etc). Anything is greatly appreciated. Please share this. Thank you for all of your support.