Wheels that Heal for David
Donation protected
Update
"Dear friends,
I keep putting off giving you an update on David because it is just so hard to know what to say. Our dear David is now in hospice care. He has had such a rough year and has fought hard, but he is nearing the end of his life journey.
Thursday morning David’s blood pressure was extremely low and had to be taken to the hospital by ambulance. David’s neurological condition is degenerative and the rate of decline has accelerated greatly in the last few months. His body can no longer keep up the fight. Friday night we had a heart-to-heart talk with the doctor here at the hospital and he told us it was time to make some difficult decisions for David. After finding an inoperable, life-threatening condition Saturday morning the decision was made to do what was best for David and not put him through any aggressive treatment.The hospital is doing a wonderful job keeping David comfortable. We are so sad it has come to this, but we truly see the hand of God on David's life over the last several months.
Although the go fund me page was set up originally to fund a van, it has become very apparent that God had other plans for David. We have been humbled by the generosity of our friends, family and even complete strangers. Your kindness toward David will help us with end-of-life expenses. We can't thank you enough and we love you all so much."
Marshall and Dayna Camp
-----------------------------------------------------------------------
Can you imagine once being able to walk, to talk, to be able to run around with ease, for it only to be all taken away? This is David Camp's story.
It didn't happen over night, nor was it caused from any action or lack of action of his own. David's life as he knew it was slowly robbed from him. Stolen by a thief called Dystonia.
Slowly, but surely, one ability at a time slipped away. When David was in the 5th grade, his parents began to notice him weaving when he walked. His gait became clumsier than usual. As time passed, he started turning his right foot under. His left arm stiffened and twisted straight back. His right arm curled the opposite direction. Bending at the elbow, he held it close to his chest. During his middle school years, teachers had to guide David down the hall by his elbow in order to prevent him from falling or crashing into other students. By the time David was half way through high school, David needed the assistance of a wheelchair to get from one end of the school to the next because it was becoming too dangerous for him to walk long distances. Eventually, David's only way of mobility was with a wheelchair.
After some time, David's speech became affected. David had always been developmentally delayed, and although his words didnt seem to flow as smoothly as some of his peers, he was a boy full of words who loved conversation with friends and family. As his Dystonia progressed, pronouncing even the most simple words became a challenge. He utilized a keyboard to express his active mind. Through all of these struggles, David continued to wear a big smile and still found ways to spend time with friends and to enjoy life. He seemed to always find joy in everything he did. His dystonia didn't seem to cause him any pain until about 2 years ago. Now he has episodes that are very painful and is in severe discomfort about 60% of each day.
David is now 26 years old and is still very much the same boy he has always been. The same wants, dreams, and desires are still very much alive. They are just trapped in a body that fights his every move. He has a very devoted family who loves him and is by his side offering all the support his life now demands. His mother works from home so she may provide his care and his father works a late shift so that he can care for David when his mother sleeps. The simplest tasks have become real struggles. Bathing, eating, even sleeping is a true challenge. Once completely independant, David now needs assistance with all of these things. But the biggest struggle of all, the most heartbreaking aspect of this whole ordeal, is that not only has David become a prisoner of a body that fights him every moment, but the house that has held so much love and support for him has now become his prison as well.
As David's Dystonia has progressed, it has become nearly impossible for David to leave his house. Although he is on several medications to help relax his muscles and help relieve other complications caused by Dystonia, David still continues to have uncontrolable movements. Until recently, David still had the ability to be able to assist his parents in transferring him from his wheelchair into the seat of the family's Honda Accord by bearing weight on his feet. David's Dystonia has now worsened to the point where he can no longer bear weight on his feet, making the transfer in and out of the car dangerous.
David typically now only leaves the house for important doctor visits. This picture shows the results of the violent outcomes of a simple outing to a doctor visit. Even with the most diligent care and cautious approach, tranfering David in the family car is no easy task. To make matters worse, David also has to use a wheelchair that does not properly support him when he has to go on outings. His better wheelchair, though not the best, supports him, but does not fit in the car.
This is David at a recent doctor visit. Because his larger wheelchair can't be loaded in the car, David has to use a smaller wheelchair that doesn't support him. His mother has to hold his head up for him.
This is picture above shows David seated in the wheelchair that he has to use when he leaves the house. David's other wheelchair, which provides more support, doesn't collapse to fit in the family car.
David and his family are in need of your help. With their limited income and insurance stretched to the max, they are not able to provide David with the transportation he needs. They need to purchase a reliable wheelchair accessible van which loads from the rear. A van with the proper accomodations that David needs is very costly. Here are some examples of the type of van David requires.
Please help David regain his mobility. Help him take the pain out of leaving his house. By donating, you will literally be giving this young man back his freedom. Please help by donating. Any donation is greatly appreciated and no donation is too small.
+
"Dear friends,
I keep putting off giving you an update on David because it is just so hard to know what to say. Our dear David is now in hospice care. He has had such a rough year and has fought hard, but he is nearing the end of his life journey.
Thursday morning David’s blood pressure was extremely low and had to be taken to the hospital by ambulance. David’s neurological condition is degenerative and the rate of decline has accelerated greatly in the last few months. His body can no longer keep up the fight. Friday night we had a heart-to-heart talk with the doctor here at the hospital and he told us it was time to make some difficult decisions for David. After finding an inoperable, life-threatening condition Saturday morning the decision was made to do what was best for David and not put him through any aggressive treatment.The hospital is doing a wonderful job keeping David comfortable. We are so sad it has come to this, but we truly see the hand of God on David's life over the last several months.
Although the go fund me page was set up originally to fund a van, it has become very apparent that God had other plans for David. We have been humbled by the generosity of our friends, family and even complete strangers. Your kindness toward David will help us with end-of-life expenses. We can't thank you enough and we love you all so much."
Marshall and Dayna Camp
-----------------------------------------------------------------------
Can you imagine once being able to walk, to talk, to be able to run around with ease, for it only to be all taken away? This is David Camp's story.
It didn't happen over night, nor was it caused from any action or lack of action of his own. David's life as he knew it was slowly robbed from him. Stolen by a thief called Dystonia.
Slowly, but surely, one ability at a time slipped away. When David was in the 5th grade, his parents began to notice him weaving when he walked. His gait became clumsier than usual. As time passed, he started turning his right foot under. His left arm stiffened and twisted straight back. His right arm curled the opposite direction. Bending at the elbow, he held it close to his chest. During his middle school years, teachers had to guide David down the hall by his elbow in order to prevent him from falling or crashing into other students. By the time David was half way through high school, David needed the assistance of a wheelchair to get from one end of the school to the next because it was becoming too dangerous for him to walk long distances. Eventually, David's only way of mobility was with a wheelchair.
After some time, David's speech became affected. David had always been developmentally delayed, and although his words didnt seem to flow as smoothly as some of his peers, he was a boy full of words who loved conversation with friends and family. As his Dystonia progressed, pronouncing even the most simple words became a challenge. He utilized a keyboard to express his active mind. Through all of these struggles, David continued to wear a big smile and still found ways to spend time with friends and to enjoy life. He seemed to always find joy in everything he did. His dystonia didn't seem to cause him any pain until about 2 years ago. Now he has episodes that are very painful and is in severe discomfort about 60% of each day.
David is now 26 years old and is still very much the same boy he has always been. The same wants, dreams, and desires are still very much alive. They are just trapped in a body that fights his every move. He has a very devoted family who loves him and is by his side offering all the support his life now demands. His mother works from home so she may provide his care and his father works a late shift so that he can care for David when his mother sleeps. The simplest tasks have become real struggles. Bathing, eating, even sleeping is a true challenge. Once completely independant, David now needs assistance with all of these things. But the biggest struggle of all, the most heartbreaking aspect of this whole ordeal, is that not only has David become a prisoner of a body that fights him every moment, but the house that has held so much love and support for him has now become his prison as well.
As David's Dystonia has progressed, it has become nearly impossible for David to leave his house. Although he is on several medications to help relax his muscles and help relieve other complications caused by Dystonia, David still continues to have uncontrolable movements. Until recently, David still had the ability to be able to assist his parents in transferring him from his wheelchair into the seat of the family's Honda Accord by bearing weight on his feet. David's Dystonia has now worsened to the point where he can no longer bear weight on his feet, making the transfer in and out of the car dangerous.
David typically now only leaves the house for important doctor visits. This picture shows the results of the violent outcomes of a simple outing to a doctor visit. Even with the most diligent care and cautious approach, tranfering David in the family car is no easy task. To make matters worse, David also has to use a wheelchair that does not properly support him when he has to go on outings. His better wheelchair, though not the best, supports him, but does not fit in the car.
This is David at a recent doctor visit. Because his larger wheelchair can't be loaded in the car, David has to use a smaller wheelchair that doesn't support him. His mother has to hold his head up for him.
This is picture above shows David seated in the wheelchair that he has to use when he leaves the house. David's other wheelchair, which provides more support, doesn't collapse to fit in the family car.
David and his family are in need of your help. With their limited income and insurance stretched to the max, they are not able to provide David with the transportation he needs. They need to purchase a reliable wheelchair accessible van which loads from the rear. A van with the proper accomodations that David needs is very costly. Here are some examples of the type of van David requires.
Please help David regain his mobility. Help him take the pain out of leaving his house. By donating, you will literally be giving this young man back his freedom. Please help by donating. Any donation is greatly appreciated and no donation is too small.
+
Organizer and beneficiary
Laura Nix Tumminello
Organizer
Germantown, TN
Dayna Camp
Beneficiary