Help Anthony control his seizures

As some of you may know Anthony was diagnosed with epilepsy and dravet syndrome when he was 1 years old. He's been having seizures since he was 9 months old. Throughout him growing up he's had more than 30 seizures and those aren't counting his baby seizures he has through out the day. He's been seeing a pediatric neurologist at National Children's hospital in DC, Dr. Schriber. He used to see a neurologist at Prince William hospital, Dr. Sandoval. She was terrible. Instead of fixing his seizures she prescribed him a medication that clouded his judgement and made him act very disoriented and made him worse. That's when my mom called Dr. Schreiber at the Children's national Hospital begging them to take Anthony because they said they couldn't accept new patients and we didn't know who else to go to that we trusted. Anthony takes medication every day for his seizures. He has frequent "drops" through out his day. He can be eating a bowl of cereal and his head would just almost dunk into his cereal bowl. When he was a baby learning how to walk when he had a "drop" it would look like someone just shoved him to the ground. He's getting better now as he gets older. He still hasn't found a way to control them. I'm sure maybe as he gets older he can? Dr. Schreiber told me to do a gene testing on him so we can really find out if it's really dravet syndrome he has or if he can ever even out grow it. His insurance doesn't cover it and I tried to apply for financial assistance but I did not get approved. It's more than $2,000 to do the procedure and bring him to DC to get tested. The doctors never give me answers because he's so young and it makes me feel so terrified because I can't fix something that I have no control over... As a Mother that's the worst feeling ever. He's starting head start this Fall and I'm so nervous for him. I wish I can cater to him the whole way. I hope I can raise money to get all the tests done that he needs to make him feel better. Now that he's starting school and becoming more independent I need to get it done but I can't because of finances, that's why I turned to this go fund me. I ran out of options, I can only do so much. I have no more alternatives. Thanks for reading. #kidswithseizures