Hello everyone! I am setting this gofundme for my son Zion Davis who is a 9 year old child suffering from a rare autoimmune disorder . At the beginning of last year i started to notice my son speech change up and his left side of his eye started to droop. I took him to his neurologist that he see for seizures and she referred us to an ophthalmologist. When the ophthalmologist evaluated him she said that she was pretty for sure that he had this rare autoimmune disorder called Myasthenia Gravis. Myasthenia is a condition caused by an abnormal immune reaction (antibody-mediated autoimmune response) in which the body's immune defenses (i.e., antibodies) inappropriately attack certain proteins in muscles that receive nerve impulses.  When we went back to the neurologist they referred us to another specialist that deals with this rare disorder and the new neurologist performed a single fiber EMG that tested his muscle function and it came back positive so the started him on oral medication called Mestinon that he takes 4 times a day just to keep his muscles from tiring out. in October 2020 Zion condition began to progress. He couldn’t keep his head up due to his muscles weakening in his neck, his speech began to get slower, and he began to tire out faster when doing an activity. The doctor then advised us that the best course of treatment for him would be IVIG treatments that he would need to get every 3 weeks intravenously.These treatments would replace the antibodies that his body is not making on its own to fight off infections. The doctor told me that the infusion center would be in contact to set up the appointment once it went through the insurance company. Well the insurance denied to pay for the medicine. While the doctor was appealing the decision Zion began to get worse. He caught covid in December and in January of 2021 he was hospitalized  for three days after going for a routine doctor visit. In the hospital he was given two emergency IVIG treatments. It is now 5 months later and Zion has not received any more treatments because the insurance is still refusing to pay for the medicine. I have reached out to different organizations for help but because the medicine is so expensive they can’t help. I have gotten a second job in order to help with the costs but it is not enough. I have also applied for disability for him just to get the insurance but that could take months and there is no guarantee he will get approved. The name of the medicine that they are using for him is called Gammagard. The estimated cost of the Gammagard per infusion will be around $6138 and he will have to have the treatments every 3 weeks. I have tried to keep his condition and everything that’s been going on private because I didn’t want anyone to worry but I don’t know what else to do. These treatments can help him significantly without them it’s gonna be hard for him to be a energetic little kid. Any little donation will be greatly appreciated!

Please help Zion fight the fight!