Marc Daniel Pehle

Marc Daniel is an 8 year old whom is fighting hard to beat the rare geniti c disease that has ahold of him. Marc has what is known as infantile neuroaxonal dystrophy. This disease is ugly... it has taken his ability to talk, walk, eat by mouth, aee, and is continuously taken more. Marc current has a GJ tube by which he is fed and given medications. June 1 he had surgery to have a trach placed. Since Marc has been in and out of the hospital for uti and seizures. At the end of July marc goes in to have a consult for a superpubic. As we all know it is hard having an I'll child, this has taken a toll on Marcs family. Marc has 3 siblings who have grown up so fast and is their mothers right helper for she is a single mother. Please help this family get back on their feet from momma being on fmla...