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Hi everyone, I hate to do this , but my son is going through a rough time with either Crohn’s disease or leukocyclastic vasculitis or the combination of both.
We will know this coming Friday the results of the 10 biopsies .
God bless and thank everyone for your help.
Update 05/30/21
Unfortunately my son’s Leukocytoclastic vasculitis has worsened and as you can imagine is taking a big toll on my son as well as ours.
This coming Thursday he has an appointment with a autoimmune disease specialist to see what treatment can be done and what to expect from this disease.
Please pray for him.
Again thanks to all that helped us in this tough times.
May God bless you all.
Update 06/07/21
My son is under a strong treatment of Prednisone (60 mg per day, plus two other medicines to protect his digestive system and to stabilize his white blood count.
Thanks again for your support on this difficult time we are going through.
Update 08/06/21
My son has been for the last 3 weeks with a reduced Prednisone dose of 40mg per day, this coming August 13, please pray that soon he can live without the prednisone and that the vasculitis doesn’t come back.
Again thanks for the continued support and prayers.
The last 8 weeks have been a roller coaster regarding my son health. We still don’t know what is going on with him. We don’t have his biopsies results. We don’t have a diagnosis yet and a plan of treatment.
We have seen his primary care Doctor, a dermatologist and now we will see a gastroenterologist. He had all kinds of labs, COVID test, CT scan, colonoscopy, and had been hospitalized for 5 days for GI bleeding. On and off steroid meds for his rash, now on antibiotics.
Please pray for him.
We will know this coming Friday the results of the 10 biopsies .
God bless and thank everyone for your help.
Update 05/30/21
Unfortunately my son’s Leukocytoclastic vasculitis has worsened and as you can imagine is taking a big toll on my son as well as ours.
This coming Thursday he has an appointment with a autoimmune disease specialist to see what treatment can be done and what to expect from this disease.
Please pray for him.
Again thanks to all that helped us in this tough times.
May God bless you all.
Update 06/07/21
My son is under a strong treatment of Prednisone (60 mg per day, plus two other medicines to protect his digestive system and to stabilize his white blood count.
Thanks again for your support on this difficult time we are going through.
Update 08/06/21
My son has been for the last 3 weeks with a reduced Prednisone dose of 40mg per day, this coming August 13, please pray that soon he can live without the prednisone and that the vasculitis doesn’t come back.
Again thanks for the continued support and prayers.