On July 1st, 2016, the lives of Scott and Adriana (Kuropas) Ellis and their families' were forever changed as they received the heartbreaking news that their precious, six-month old daughter, Alexandria Tamara, had been diagnosed with a rare and progressive neuromuscular disorder called spinal muscular atrophy (SMA), which affects 1 in 10,000 children. As they embark on the most difficult journey of their lives, they will look to their family and friends for love, emotional support and prayers. In addition, Scott and Adriana will need to make many decisions about Alexandria’s care and treatment, which are accompanied by inevitable financial burden. This page has been set up to try and help alleviate some of that burden and your contributions would be tremendously appreciated---as many have asked how they can help the Ellis family.
Please feel free to share this link with your contacts and thank you, in advance, for your unwavering support.
For more information on SMA, please see the site below:
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- Pam Janik
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