Donation protected
Hi everyone.
This is a very wierd one for me, but I'm at a loss and hoping that you guys can help.
As many of you will know, I have battled since the age of 6 with varying degrees of ill-health.
Over the years I have faced many a battle trying to prove to medics that my problems were not psychological and, eventually after many years of trauma, at the age of 14 i was diagnosed with Chronic Intestinal Pseudo Obstruction.
After periods of feeding through nasal gastric tubes, PEG feeding and Total Parental Nutrition and many, many years of hospital admissions, my health began to stabilise, at least to some extent.
Don't get me wrong, i still vomited daily and lived with debilitating symptoms, but we somehow managed.
Sadly, however, over the years, there has been little continuity of care and, my childhood trauma has played a part in my avoidance of hospital admissions.
With several new diagnoses, worsening symptoms and more pills than your local pharmacy, I'm back, pretty much at the begining.
The difference being, I'm now 32, married and have 3 young children to care for.
Life is really hard sometimes and I do NOT like to admit it. So, as I'm sure you can appreciate, doing this is huge.
WHERE I AM NOW:
Currently, I'm not in a great place.
My health declined dramatically between 2018- present.
Most notably the past 6 months have been pretty hellish.
The last month or two even more so.
It got to the point enough was enough and, even the GP had said 'I dont know what else I can do for you'.
So. Off I went to A&E.
And this is where i am now, asking for your help.
I spent 2 weeks in hospital, away from my husband and children.
I had a PEG tube fitted to alleviate my symptoms, meaning essentially that I can 'vent' the air/ fluid off of my stomach and be more comfortable (I will attach images, to illustrate the extent of abdominal destention).
There is, additionally, a chance this will need to be converted into a PEG-J which will enable me to also be fed directly into my bowel, bypassing my stomach in the future.
This is particularly relevant to me now, as recent tests have shown a decline in my stomachs ability to digest food and empty at an appropriate rate.
This causes severe nausea, vomiting, pain, and fatigue.
I also battle daily with the effects of Postural Tachycardia Syndrome, and during my latest hospital admission, my BP was considerably lower than the medics would have liked. This was also accompanied by the classic increased heart rate and dizziness. :(
Ehlers Danlos Syndrome goes hand in hand with these conditions, which affects the collagen production your body. This can manifest in many ways, but in my case can be linked to my other issues, as well as chronic fatigue syndrome, bladder issues, migraines, irregular breathing, reynauds disease and chronic pain. All of which I battle with.
With all of this in mind, it has been suggested on several occasions that our family would benefit from an assistance dog.
This would give us all our independence back. My children would no longer need to be my carers, my husband would be able to socialise and get his life back and I could have more freedom and feel safe when walking alone, without fear of collapse or a drop in BP.
Unfortunately, due to COVID-19 and many other factors, the waiting lists for these special little treasures are unbelievable and our only viable option right now is to buy the specific breed of dog as a puppy, train it ourselves and keep applying for the intensive training it will need so we are able to be placed on the waiting list.
This does not come cheaply, and due to only being on a single wage, and seeing a loss of earnings due to my recent hospitalization, we need to fundraise to make this possible.
This could change my familys life for the better, and I cannot describe how much it would mean if any of you could help in any way you see fit.
I know times are so very difficult for everyone right now, and I feel so awful needing to ask for help, and anyone who knows me will understand how hard this is for me to do, but any support you can give would be so gratefully recieved.
With greatest thanks,
The Cornells.
Xx
This is a very wierd one for me, but I'm at a loss and hoping that you guys can help.
As many of you will know, I have battled since the age of 6 with varying degrees of ill-health.
Over the years I have faced many a battle trying to prove to medics that my problems were not psychological and, eventually after many years of trauma, at the age of 14 i was diagnosed with Chronic Intestinal Pseudo Obstruction.
After periods of feeding through nasal gastric tubes, PEG feeding and Total Parental Nutrition and many, many years of hospital admissions, my health began to stabilise, at least to some extent.
Don't get me wrong, i still vomited daily and lived with debilitating symptoms, but we somehow managed.
Sadly, however, over the years, there has been little continuity of care and, my childhood trauma has played a part in my avoidance of hospital admissions.
With several new diagnoses, worsening symptoms and more pills than your local pharmacy, I'm back, pretty much at the begining.
The difference being, I'm now 32, married and have 3 young children to care for.
Life is really hard sometimes and I do NOT like to admit it. So, as I'm sure you can appreciate, doing this is huge.
WHERE I AM NOW:
Currently, I'm not in a great place.
My health declined dramatically between 2018- present.
Most notably the past 6 months have been pretty hellish.
The last month or two even more so.
It got to the point enough was enough and, even the GP had said 'I dont know what else I can do for you'.
So. Off I went to A&E.
And this is where i am now, asking for your help.
I spent 2 weeks in hospital, away from my husband and children.
I had a PEG tube fitted to alleviate my symptoms, meaning essentially that I can 'vent' the air/ fluid off of my stomach and be more comfortable (I will attach images, to illustrate the extent of abdominal destention).
There is, additionally, a chance this will need to be converted into a PEG-J which will enable me to also be fed directly into my bowel, bypassing my stomach in the future.
This is particularly relevant to me now, as recent tests have shown a decline in my stomachs ability to digest food and empty at an appropriate rate.
This causes severe nausea, vomiting, pain, and fatigue.
I also battle daily with the effects of Postural Tachycardia Syndrome, and during my latest hospital admission, my BP was considerably lower than the medics would have liked. This was also accompanied by the classic increased heart rate and dizziness. :(
Ehlers Danlos Syndrome goes hand in hand with these conditions, which affects the collagen production your body. This can manifest in many ways, but in my case can be linked to my other issues, as well as chronic fatigue syndrome, bladder issues, migraines, irregular breathing, reynauds disease and chronic pain. All of which I battle with.
With all of this in mind, it has been suggested on several occasions that our family would benefit from an assistance dog.
This would give us all our independence back. My children would no longer need to be my carers, my husband would be able to socialise and get his life back and I could have more freedom and feel safe when walking alone, without fear of collapse or a drop in BP.
Unfortunately, due to COVID-19 and many other factors, the waiting lists for these special little treasures are unbelievable and our only viable option right now is to buy the specific breed of dog as a puppy, train it ourselves and keep applying for the intensive training it will need so we are able to be placed on the waiting list.
This does not come cheaply, and due to only being on a single wage, and seeing a loss of earnings due to my recent hospitalization, we need to fundraise to make this possible.
This could change my familys life for the better, and I cannot describe how much it would mean if any of you could help in any way you see fit.
I know times are so very difficult for everyone right now, and I feel so awful needing to ask for help, and anyone who knows me will understand how hard this is for me to do, but any support you can give would be so gratefully recieved.
With greatest thanks,
The Cornells.
Xx
Organizer
Rosie Cornell
Organizer
England