Support Baby Fifer's Uphill Battle

The Beginning

Kayla and Seth Fifer are a young, married couple expecting their first child. Their news brought such happiness to me as I was a first time dad and knew exactly how he was feeling! With him being my personal trainer we had many morning  conversations about him being a dad along the way as it happened part way through our journey. How exciting!! Being a new father to a healthy baby girl who is 16 months old now, I have never felt like I do this moment. I knew after he told me this news that I wanted to help them in a way I had never done before.  I am committed to helping raise money for the Fifer’s so they can take care of their family and focus on the journey ahead without the additional monetary strains.  
 We do not know when or if they will be able to go back to work.

Everything seemed to be going as planned until Kayla’s midwife noticed some fluid in baby girl’s skull while viewing the results of the mid pregnancy ultrasound. This was the beginning of the long road ahead. 

The Climb

Kayla and Seth did not know it at the time, but baby girl’s uphill battle was just beginning. Because of the ultrasound findings, Kayla was referred to a specialist to monitor the baby’s development and the amount of fluid present in her skull. The specialist informed Kayla and Seth that their baby may need medical intervention, by way of a shunt, soon after delivery. Her specialist referred them to Riley Hospital for Children in Indianapolis for a second opinion.

Getting Steeper

On January 21st, 2021 Kayla and Seth’s world came crashing down. After a long day of testing and appointments, they received the news every parent fears; something was wrong with their little girl. 

- After a fetal MRI, the doctors found several brain disorders that are very rare on their own, let alone all in one patient. 

- With the combination of Dandy-Walker Syndrome, Polymicrogyria, and Schizencephaly the experts are left with more questions than answers. 

- A preschool cognitive development may be attainable; however, the neurologist’s ultimate goal would be for her to walk and talk independently. 

- She may not be capable of eating or breathing on her own. 

- Seizures are common with these different disorders. 

- Doctors cannot do anything surgically to improve or repair baby’s brain malformations. 

-Kidney Dysplasia is also present in both of baby girl’s kidneys, which will eventually lead to dialysis and even a need for transplant.

You can imagine how overwhelming all of this must be for these young parents. There isn’t anything we can do to make this better or lessen their pain; however, we can help them move forward, one uphill step at a time. Through this Go Fund Me, I would like to help ease the financial stress that accompanies this devastating news. 

Kayla and Seth are facing unforeseen doctor’s appointments, testing, and special care needs. These unexpected circumstances come with unexpected costs. Though we are not certain what specific treatment and care needs Baby Fifer will need, this fund will help pay for traveling expenses, doctor’s appointments, hospital bills, and tentative care needs. Due to the care of baby girl, the family may need additional financial support after returning home, as it is likely both parents will not be able to remain employed full time.

We Need You

If you would like to help Kayla and Seth at this time, please make a monetary contribution. We appreciate any support you can give during these tough times. Anything will make a tremendous difference as they continue the battle for their little girl.