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Paris was born in 2003 with a rare heart condition called tricuspid atresia. Over the years paris has undergone 5 open heart surgeries at the world famous Great Ormond Street Hospital. when Paris was 3 years old I noticed that she started to develop a small curve in her spine, we went back and forth to London for appointments but nothing seemed to progress, in this time Paris was admitted into hospital to have an artificial valve fitted, it was then that things changed as Paris would then need the blood thinning drug warfarin to keep her valve in good working order.
In 2012 Paris had a new valve, which we are hoping will last a long while, but with it came more complications.
Paris has been airlifted to Gosh on a few occasions recently as she has suffered from a condition called atrial flutter.
Over the years Paris's curve has got pro
gressively worse, in fact she now has a 120 degree curve.
In April this year we returned to the Spinal surgeon at GOSH only to be given the news that surgery for Paris is completely out of the question as her heart is not strong enough.
As you can imagine we were devasted by this news, and so now we are trying to do everything we possibly can to help my beautiful little girl.
After some investigation, Paris now participates in private one on one Pilate exercise designed to improve but never cure her deformed back. Along with private physio sessions we are hopeful that we will soon see improvement... The main change was after day 1, and this was seeing Paris face light up when she said to us 'I feel so much better, look at me I feel straight already'. If you knew or do know Paris, you must realise how heart felt this was. Paris has suffered so much and this just gave us that drive to push even harder....
We are doing all we can but to continue without effect on the family we are asking for any support that might be out there.... Travelling 30 miles into Norwich every week, trips to London, private Pilate sessions every week, physio, equipment suggested by professionals just takes its toll.
So yes, financially we would love help but maybe someone somewhere may have equipment that could help. We would ideally love a reforming machine at home but at a cost of £1500 this is just not possible.
So please if you can help us in any way, any donation big or small would go such a way to making our little girls life just so much easier.
In 2012 Paris had a new valve, which we are hoping will last a long while, but with it came more complications.
Paris has been airlifted to Gosh on a few occasions recently as she has suffered from a condition called atrial flutter.
Over the years Paris's curve has got pro
gressively worse, in fact she now has a 120 degree curve.
In April this year we returned to the Spinal surgeon at GOSH only to be given the news that surgery for Paris is completely out of the question as her heart is not strong enough.
As you can imagine we were devasted by this news, and so now we are trying to do everything we possibly can to help my beautiful little girl.
After some investigation, Paris now participates in private one on one Pilate exercise designed to improve but never cure her deformed back. Along with private physio sessions we are hopeful that we will soon see improvement... The main change was after day 1, and this was seeing Paris face light up when she said to us 'I feel so much better, look at me I feel straight already'. If you knew or do know Paris, you must realise how heart felt this was. Paris has suffered so much and this just gave us that drive to push even harder....
We are doing all we can but to continue without effect on the family we are asking for any support that might be out there.... Travelling 30 miles into Norwich every week, trips to London, private Pilate sessions every week, physio, equipment suggested by professionals just takes its toll.
So yes, financially we would love help but maybe someone somewhere may have equipment that could help. We would ideally love a reforming machine at home but at a cost of £1500 this is just not possible.
So please if you can help us in any way, any donation big or small would go such a way to making our little girls life just so much easier.
Organizer
Dawn Kelly
Organizer