Help Remington Get Treatment in California
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Hello, my name is Elizabeth, and I am the mother of an amazing 2-year-old boy named Remington (Remy). We live in Colorado.
I am starting this fundraiser to help pay for the cost of a treatment program in California that will help treat two of my son’s allergy diseases. Remy has multiple life-threatening (anaphylaxis) food allergies that have resulted in multiple hospitalizations and have him living in a sterile environment with little to no outside contact. Remy was also diagnosed with eosinophilic esophagitis (EOE), which is allergy inflammation in the esophagus that leads to esophageal scarring making it difficult for the esophagus to move correctly. He is at risk for esophageal strictures and food impactions. EOE does not have a cure currently. Remy has routine blood panels, skin panels, upper GI endoscopies with biopsy, and prescriptions to prevent further damage of his esophagus and reduce the number of “unexplained anaphylaxis” events. His diet is extremely limited and medically mandated with multiple vitamins, multimineral, and digestive aides to keep him healthy.
In addition to Remy’s allergy diseases, he was diagnosed as non-verbal with several developmental delays related to speech, feeding, and sensory processing. Remington is in multiple therapies for speech, feeding, and sensory processing. He will soon be evaluated for possible autism and receptive language disorder.
Remy has an amazing opportunity for treatment through Southern California Allergy Institute’s Tolerance Induction Program (TIP)- the program can treat his food allergies (50+) and possibly get his EOE into remission. This is the only program available for children like my son and has a near-perfect success rate! In 6-months, after Remy’s next upper GI endoscopy with biopsy and blood panels, we will be traveling to Long Beach, California for evaluation. As I work with the program, it is driven by cost per allergen and case complexity. Remy has a complex and severe case, he has multiple allergens to overcome and will need multiple years of treatment. Treatment will be around $16,000 per year, not including travel. This is a private pay program and there is little to no coverage from primary and secondary insurance.
I started this campaign to help pay for the costs for the program and for travel. Due to the severity of Remy’s allergy diseases, he cannot stay in hotels, travel via airplane or bus. He cannot be in day care or in any environment that could expose him to his allergens. I am hoping to purchase a travel van or RV and drive Remy to and from his treatments to California over the next few years. Once he begins the program, he will have treatment every 8-weeks in California until he is in remission or medically cleared. He cannot miss treatments or take any breaks in the program.
I am a single mother working a full-time job and part-time job to try to save for Remy’s treatment, but I will not make enough to pay for his treatments (even with two jobs). I am Remy’s only parent and only caregiver. I am asking for help to pay for Remington’s treatments and to help pay for an RV for our travel to and from California. I truly believe this program can change my son’s life and give him a chance to one day go to school, play sports, or live a normal life without the fear of his allergy diseases.
Remy is such a energetic, happy, brave, loving, and adventurous child- this opportunity can change his life for the better. It can give Remy a chance and that is all I am hoping for, a chance to have a normal life. He's been dealt a rough hand in life but I am hoping to make his life better through this program.
Thank for anything you can contribute. And even if you can't contribute, words of encouragement mean so much to us.
All the love to you and your family!
Here is the program:
https://www.socalfoodallergy.org/about#4
Here is a brief video about TIP:
https://tpirc.zendesk.com/hc/en-us/articles/360021759092-How-does-TIP-differ-from-OIT-
Here are the cost averages:
https://tpirc.zendesk.com/hc/en-us/articles/360028666552-Financial-Planning-for-the-Tolerance-Induction-Program-TIP-
Here are patient stories:
https://www.socalfoodallergy.org/patient-stories
Here is an explanation of unexplained/unprovoked anaphylaxis (extremely rare for pediatric patients):
https://www.nih.gov/news-events/news-releases/abnormal-immune-cells-may-cause-unprovoked-anaphylaxis
I am starting this fundraiser to help pay for the cost of a treatment program in California that will help treat two of my son’s allergy diseases. Remy has multiple life-threatening (anaphylaxis) food allergies that have resulted in multiple hospitalizations and have him living in a sterile environment with little to no outside contact. Remy was also diagnosed with eosinophilic esophagitis (EOE), which is allergy inflammation in the esophagus that leads to esophageal scarring making it difficult for the esophagus to move correctly. He is at risk for esophageal strictures and food impactions. EOE does not have a cure currently. Remy has routine blood panels, skin panels, upper GI endoscopies with biopsy, and prescriptions to prevent further damage of his esophagus and reduce the number of “unexplained anaphylaxis” events. His diet is extremely limited and medically mandated with multiple vitamins, multimineral, and digestive aides to keep him healthy.
In addition to Remy’s allergy diseases, he was diagnosed as non-verbal with several developmental delays related to speech, feeding, and sensory processing. Remington is in multiple therapies for speech, feeding, and sensory processing. He will soon be evaluated for possible autism and receptive language disorder.
Remy has an amazing opportunity for treatment through Southern California Allergy Institute’s Tolerance Induction Program (TIP)- the program can treat his food allergies (50+) and possibly get his EOE into remission. This is the only program available for children like my son and has a near-perfect success rate! In 6-months, after Remy’s next upper GI endoscopy with biopsy and blood panels, we will be traveling to Long Beach, California for evaluation. As I work with the program, it is driven by cost per allergen and case complexity. Remy has a complex and severe case, he has multiple allergens to overcome and will need multiple years of treatment. Treatment will be around $16,000 per year, not including travel. This is a private pay program and there is little to no coverage from primary and secondary insurance.
I started this campaign to help pay for the costs for the program and for travel. Due to the severity of Remy’s allergy diseases, he cannot stay in hotels, travel via airplane or bus. He cannot be in day care or in any environment that could expose him to his allergens. I am hoping to purchase a travel van or RV and drive Remy to and from his treatments to California over the next few years. Once he begins the program, he will have treatment every 8-weeks in California until he is in remission or medically cleared. He cannot miss treatments or take any breaks in the program.
I am a single mother working a full-time job and part-time job to try to save for Remy’s treatment, but I will not make enough to pay for his treatments (even with two jobs). I am Remy’s only parent and only caregiver. I am asking for help to pay for Remington’s treatments and to help pay for an RV for our travel to and from California. I truly believe this program can change my son’s life and give him a chance to one day go to school, play sports, or live a normal life without the fear of his allergy diseases.
Remy is such a energetic, happy, brave, loving, and adventurous child- this opportunity can change his life for the better. It can give Remy a chance and that is all I am hoping for, a chance to have a normal life. He's been dealt a rough hand in life but I am hoping to make his life better through this program.
Thank for anything you can contribute. And even if you can't contribute, words of encouragement mean so much to us.
All the love to you and your family!
Here is the program:
https://www.socalfoodallergy.org/about#4
Here is a brief video about TIP:
https://tpirc.zendesk.com/hc/en-us/articles/360021759092-How-does-TIP-differ-from-OIT-
Here are the cost averages:
https://tpirc.zendesk.com/hc/en-us/articles/360028666552-Financial-Planning-for-the-Tolerance-Induction-Program-TIP-
Here are patient stories:
https://www.socalfoodallergy.org/patient-stories
Here is an explanation of unexplained/unprovoked anaphylaxis (extremely rare for pediatric patients):
https://www.nih.gov/news-events/news-releases/abnormal-immune-cells-may-cause-unprovoked-anaphylaxis
Organizer
Elizabeth Harmes
Organizer
Pueblo, CO