Hi there! My name is Chelsea Derr and I am here to tell you Isaac's story and vigorous fight against MD (Muscular Dystrophy).
Isaac Davis is a 26 year old husband, father, brother, son, uncle, and friend. Isaac is an extremely active man who lives for any activity and adventure that includes the outdoors. He and his wife Hallie have two beautiful daughters, Luna (6), and Tala (4). Isaac graduated in September of 2015 with his Bachelor’s degree in Healthcare Management and works as a Business Systems Analyst, Isaac is also a firefighter for the St. Anthony Fire Department.
Before October 2015 Isaac had been eating clean and was exercising every day, he felt he was in the best shape of his life.
On October 23, 2015, Isaac woke up unable to fully extend his elbows. Their physician was having a difficult time interpreting his symptoms, and as Isaac left his appointment his pain had enveloped his entire body by the time he arrived home so they rushed to the emergency room. After they performed lab work they diagnosed him with a UTI, Traumatic Rhabdomyolysis (breakdown of muscle tissue that releases a damaging protein into the blood), and Hypophosphatemia (extremely low phosphate level). They later found out once the lab culture was performed that Isaac did not in fact have a UTI, but he was severely septic (life-threatening complication of an infection reaching the bloodstream). Over the next month after receiving medication, Isaac tried to return back to his day to day living. He was still having symptoms of pain, lack of appetite and sleep, nausea, and joint and muscle soreness.
Between November 2015, and January 2016, his symptoms became much worse. His pain was now focused primarily in his legs. There was an extreme decrease in strength and increase in pain. He was unable to grip tools or work longer than a few hours at a time. He was unable to focus and was constantly feeling fatigued. January was full of appointments with a variety of specialists trying to determine Isaac's condition.
On January 18, 2016, Hallie was woken up by their dog acting frantic and jumping on the bed. Hallie walked into the bathroom finding Isaac on the floor, conscious but unable to speak or move. She called 911 right away. Once in the ER, his heart was beating over 200 BPM and was about to stop. Isaac was having a heart attack caused by dangerously low levels of phosphorus. These events brought a traumatizing level of pain, along with the feeling of being awake through it all, what he felt in January has stuck with him.
All of February and March were spent taking tests on top of tests. Unsure of a specific treatment, a change in his medications put him in the hospital for a short stay again in April. They have performed genetic testing and are still waiting on more results, specialists are still unsure exactly what this disease is but the symptoms parallel to another disease, Muscular Dystrophy.
Without a specific diagnosis Isaac is being treated for a Metabolic Myopathy of Type I muscles. This means that the disease is attacking his core/proximal muscles, making it difficult to walk and stand, decreasing flexibility and range of motion, and causing extreme fatigue. Isaac is currently using a cane, and eventually will lose function of his legs. As the disease progresses, the disease will continue to attack muscles in the core including the heart and lungs resulting in organ failure.
If you know the Davis', you know that they have been nothing but optimistic. They are taking every step to continue living a normal life, knowing now that there are limitations. They are the family that gives the shirts off their backs to help you succeed in life. Now it's our turn to return the shirts.
We want to do everything in our power to help them during this difficult time. All the money raised will be given to help with the overwhelming amount of medical bills. Thank you for taking your time to read his story and considering to help.
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- Skycroft Party Suhr
- Cameron & Michelle Winter
- Andrea Christian Nicklow
- Julie Marti-McLain
Organizer and beneficiary
Chelsea Marie Derr