
Jayden's Army
Jayden Perkins is a happy, funny, loving, 11 year old boy who loves his friends, his dogs and Lego! He lives with me (his Mummy, Kate), and his two pups (Oreo and Scampi), in Swineshead, Lincolnshire.
On the 29th February 2016, we were given the worst possible news that any parent could hear. Jayden was diagnosed with Duchenne Muscular Dystrophy, an incurable muscle wasting condition. Caused by the bodys inability to produce dystrophin, a vital protein for muscle cell regeneration. DMD affects one in 3500 boys (and one in 50 million girls), it is a genetic condition causing those affected to lose their ability to walk around the age of 12, and due to heart and lung function deterioration, lose their life around the age of 25.
To say we were devastated is an understatement and it has taken many hours, days, weeks and now months, on a rollercoster of exhausting emotions, to try and even begin to come to terms with this.
There is currently no cure for DMD. There is a lot of research going on, lots of clinical trials and lots of people trying their hardest to find that cure and save our precious boys. As Jayden's Mum I HAVE to know I am doing everything possible in the quest to make this happen.
As time goes on and, slowly but surely, Jayden deteriorates physically, he will need expensive, specialist equipment. I am trying to raise money for Jayden, and for clinical research to find that magical cure we so desperately need.
Please join me in building this Army of support for Jayden and Duchenne UK, in donating whatever possible. I will split any money raised between a fund for Jayden's future medical needs and Duchenne UK (a leading charity dedicated to finding a cure for this cruel condition).
We will be running several events in the coming months to raise money for Jayden's Army, which we will keep you all posted with...
Your support means the world to me, my family and most importantly, to Jayden.
Love from,
Kate, Jayden, Oreo & Scampi
(The Perkins')
x x x x x x