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My nephew, Baby Kian was born with a condition known as bladder exstrophy. His bladder is exposed through his abdomen and his urinary tract, bladder and penis all have to be surgically reconstructed. This will include dislocating and relocating his legs. He will be in in casts for at least a month . He and his mommy will be at the hospital this entire time and she will not be able to return to work indefinitely. His daddy will have to return home to work, after just a few days, but their income is going to be extremely limited.
Please help with any little bit you can spare. Your prayers are appreciated.
Thank you in advance!
What is Bladder Exstrophy?
Bladder exstrophy (x-tro-fee) is a bladder that is not formed right. The word Exstrophy is derived from the Greek word ekstriphein, which literally means to “turn inside out.” Bladder exstrophy is a malformation of the bladder, in which the bladder and genitals are split in half, turned inside out. The skin of the lower abdominal wall that normally covers the bladder also does not form properly and is separated, thus exposing the inside of the bladder to the external world. If you imagine a balloon that has been split and opened up so that the inside of the balloon is visible, you will have a picture of what has happened.
Bladder exstrophy is a rare and initially devastating, congenital birth defect that results from abnormal development of the cloacal membrane and occurs in 1 in 30,000-50,000 births. Repair of the exstrophied bladder requires surgical reconstruction. With current medical procedures, the patient with exstrophy has a good chance for urinary continence with surgical reconstruction or through intermittent catheterization. However, this positive medical outcome occurs through great pain and sacrifice on the part of the children and their families. The child with exstrophy may undergo multiple surgical procedures, associated lengthy hospitalizations, and many repeated outpatient visits and treatments, all of which impact the child’s psychosocial, cognitive, and behavioral development.
Please help with any little bit you can spare. Your prayers are appreciated.
Thank you in advance!
What is Bladder Exstrophy?
Bladder exstrophy (x-tro-fee) is a bladder that is not formed right. The word Exstrophy is derived from the Greek word ekstriphein, which literally means to “turn inside out.” Bladder exstrophy is a malformation of the bladder, in which the bladder and genitals are split in half, turned inside out. The skin of the lower abdominal wall that normally covers the bladder also does not form properly and is separated, thus exposing the inside of the bladder to the external world. If you imagine a balloon that has been split and opened up so that the inside of the balloon is visible, you will have a picture of what has happened.
Bladder exstrophy is a rare and initially devastating, congenital birth defect that results from abnormal development of the cloacal membrane and occurs in 1 in 30,000-50,000 births. Repair of the exstrophied bladder requires surgical reconstruction. With current medical procedures, the patient with exstrophy has a good chance for urinary continence with surgical reconstruction or through intermittent catheterization. However, this positive medical outcome occurs through great pain and sacrifice on the part of the children and their families. The child with exstrophy may undergo multiple surgical procedures, associated lengthy hospitalizations, and many repeated outpatient visits and treatments, all of which impact the child’s psychosocial, cognitive, and behavioral development.