She thought it was a sign of hope, but little did she know Serve Aplastic Anemia is a life-threatening disease.
What is SAA? A very rare blood disorder disease in which the bone marrow does not make enough blood cells for the body. The disease only effects 1 person per million. The blood cells the body needs are: red blood cells (to carry oxygen), white blood cells (to fight infection), and platelets (to control bleeding, internal organs and externally).
Eliana has had multiple transfusions, central lines, and bone marrow biopsies. Currently she is going through Immunosuppressant therapy (which suppresses the activity of immune cells that are damaging her bone marrow. This helps your bone marrow recover and generate new blood cells.), because this is a standard treatment for those who don’t have a sibling or bone marrow match this is what we’ve been doing for over a 1yr ½ now. (Eliana is now 3 years old.)
Today, the only cure for this disease is a bone marrow transplant. Because of Eliana's ethnicity a donor is very rare and almost impossible. Jenn plans to go through IVF treatment (in vitro) to create a “savior sibling” for Eliana. Thus, we are hoping friends and family or anyone that has been effected with a life threatening disease could help with the expenses.
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