Please Help the Beedle Family
Donation protected
Hi everyone, we are raising money to help the Beedle family: Amanda, Adam, Annabelle, & Abigail. Their two precious daughters, Annabelle (4 yrs) & Abigail (9 months) have BOTH been diagnosed with a very rare form of Batten's disease (CLN2). Batten's disease is a terminal disease of the nervous system, a brain degenerative disease in which there is no cure.
Annabelle & Abigail are the first two children to be diagnosed with this form of Batten's Disease at Lurie Children's Hospital. There is a newer treatment (Brineura) that can slow the progression of the disease. Baby Abigail will become the youngest child in the nation to ever receive this treatment.
Please join us in helping the Beedle family as they will have both girls in treatment. Let us join together in prayer for each one of them. They have & will continue to have immense medical expenses. Our hope is to also support them while they try to make every moment with their two little girls special. We pray that finances will become one less worry that they endure during this time.
Organizer and beneficiary
The Beedle Family Fund
Organizer
Saint Anne, IL
Amanda Beedle
Beneficiary
