Antisynthetase syndrome
Donation protected
Dear family and friends.......
Glory to God! His sickness started the second week of January 2020. His last day of work was January 24th, 2020. I took him to see doctors after doctors, follow up with labs after labs. There were NO treatments cause they didn't know what he had. By the middle of April, he was having hard time getting up out of bed and walking. The primary care doctor had to ordered Home Health Care to come to the home to assist me for three months (May to July). He went from 186lbs to 124 lbs by June. July 2nd, he had appointment with the Rheumatologist, doctor Dennis DePaine. The doctor diagnosed him within 40 minutes after examination with Antisynthetase Syndrome. It's supper rare. He's one out of out of 10 million that has it.
October 31st, he was air lifted to Stanford Hospital in critical condition. In ICU, he was hooked up to an ECMO machine. Three days later blood clot was removed from the main artery.
December 2nd, he had the lung transplant and December 11th he had tracheotomy done.
He's gone through so much this year. Over all he's in good spirit, thank God!
Love and Prayers: The Chanthapaseuth's (Chan, Lia, Isaac, Jasmine, Seth, and Saya)
Glory to God! His sickness started the second week of January 2020. His last day of work was January 24th, 2020. I took him to see doctors after doctors, follow up with labs after labs. There were NO treatments cause they didn't know what he had. By the middle of April, he was having hard time getting up out of bed and walking. The primary care doctor had to ordered Home Health Care to come to the home to assist me for three months (May to July). He went from 186lbs to 124 lbs by June. July 2nd, he had appointment with the Rheumatologist, doctor Dennis DePaine. The doctor diagnosed him within 40 minutes after examination with Antisynthetase Syndrome. It's supper rare. He's one out of out of 10 million that has it.
October 31st, he was air lifted to Stanford Hospital in critical condition. In ICU, he was hooked up to an ECMO machine. Three days later blood clot was removed from the main artery.
December 2nd, he had the lung transplant and December 11th he had tracheotomy done.
He's gone through so much this year. Over all he's in good spirit, thank God!
Love and Prayers: The Chanthapaseuth's (Chan, Lia, Isaac, Jasmine, Seth, and Saya)
Organizer
Jasmine Saleah
Organizer
Stockton, CA