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Please Help Me Keep On Rolling

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I wanted to die everyday for 20 years After 30 years Multiple sclerosis put me in a wheelchair. I am in it 24 hours a day actually sleep in the chair the one
I have now is used it was not set up for my height and weight so it caused pressure sore which turned into affection and put me in the hospital and now I have a bone infection. So they have to amputate my pinky toe. There is another pressure sore just above my ankle and they are trying to control the infection so I don’t have to amputate further but once I get in the wheelchair I won’t have these problems with the pressure sores.and  I need other equipment so I can use the toliet and shower at home. I had no idea it was so expensive being disabled the chair I have is a $25,000 chair and allows me to raise my legs and 90° angle leave the chair back so I can sleep in it I’m literally in the chair 24 seven unless I’m using the toilet.  Thank you to everyone who wished me well in that have been keeping a secret who was going to hire somebody with a dreadful illness with multiple sclerosis. I knew there was something wrong when I was 17 with my legs and I decided no never to get a drivers license becauseI’ve never felt like I had the strength in my legs to press the brakes when I needed too. Was not worth the risk of killing someone so I never got a license which was a hard choice growing up in Los Angeles. I’ve gone from being able to climb three flights of stairs without having to stop and rest my legs to not being able to step up onto the curb. If I seemed hard with you apologize but my life was very hard and to hear other people complain about what they had to go through as I was suffering secret did not sit well with me. I was seriously contemplating suicide in 1997 because I had no peace just pain radiating through my body I went to the advanced pain Institute and my neurosurgeon looked at me and said I know what you think and don’t do it give me three years and I’ll get your pain under control   he did finally by freezing the nerve in my back that was causing the pain radiates through my whole body.  I was able to get off of the OxyContin because of what he did even though I was continuing to lose the ability to walk I didn’t have a pain. So now you all know what I’ve been hiding for thirty years. 

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    Organizer

    Ajay Johnson
    Organizer
    Los Angeles, CA

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